Juvenile Scleroderma

Author: Shelley Ensz. Scleroderma is highly variable. See Types of Scleroderma. Read Disclaimer
Coping with a Child's Illness
Patient and Caregiver Stories
The most important thing to know juvenile scleroderma is that it is a form of arthritis, and it is important to consult a juvenile scleroderma expert.


Juvenile Scleroderma Video
Video: Juvenile Scleroderma

Presented by Isabella Ensz
*More Sclero Videos*

When any form of scleroderma (either localized or systemic) occurs in children, it is also called Childhood Scleroderma or Juvenile Scleroderma. It is a form of juvenile arthritis. (Also see What is Scleroderma? and Types of Scleroderma)

Over 90% of cases of juvenile scleroderma are localized, such as morphea, linear or en coup de sabre. These types affect only the skin, and not the internal organs. They do not reduce life expectancy in any way. Less than 10% of the cases are systemic scleroderma, such as diffuse or limited systemic sclerosis.

Less than 10% of the cases are systemic scleroderma, such as diffuse or limited systemic sclerosis. Localized scleroderma does not "progress" into systemic sclerosis, and only very rarely do the two diseases occur together.

Long-Term Efficacy of Methotrexate Demonstrated in Pediatric Linear Scleroderma. Patients treated with methotrexate (MTX) for pediatric linear scleroderma may achieve complete and long-lasting remission. Rheumatology Advisor, 06/22/2020. (Also see Juvenile Scleroderma Research)

Overview of Juvenile localized scleroderma (JLS) and its management. More studies of JLS pathophysiology are needed to allow the identification of biomarkers and therapeutic targets. PubMed, World J Pediatr, 11/30/2019.

Juvenile Scleroderma

Update on juvenile systemic sclerosis. Currently, treatment approaches are based only on adult data, and problems exist in extrapolating these data to a pediatric population. PubMed, Curr Rheumatol Rep.

Multimodality Thoracic Imaging of Juvenile Systemic Sclerosis: Emphasis on Clinical Correlation and High-Resolution CT of Pulmonary Fibrosis. Common thoracic findings in juvenile systemic sclerosis and treatment decisions and prognostic assessment are directly related to imaging findings along with clinical evaluation. PubMed, AJR Am J Roentgenol. (Also see Diagnosis of Scleroderma Pulmonary Involvement)

Books for Juvenile Scleroderma

Books for Juvenile Scleroderma features the ISN's Voices of Scleroderma book series, which is base on our web site! ISN.

Experts for Juvenile Scleroderma

Juvenile Scleroderma Experts. It is very important to consult a scleroderma expert for the proper diagnosis and treatment of scleroderma, because it is a rare disease. Treatments are better at preventing progression than healing any damage that has already occurred. ISN.

Prognosis for Juvenile Scleroderma

Prognosis for Juvenile Scleroderma. Localized scleroderma, such as linear, morphea, en coup de sabre, do not reduce a person's life expectancy. For children with systemic sclerosis (scleroderma), such as diffuse or limited/CREST, the survival rate is better for those who have adult onset. ISN. (Also see Types of Scleroderma)

Prognosis: Localized (Linear/Morphea)
Prognosis: Systemic (Diffuse/Limited)

Research on Juvenile Scleroderma

Nailfold Capillaroscopy
Prognosis and Mortality

Coping with a Child's Illness

Coping with a Child's Illness can be quite challenging, but with the right resources, knowledge and attitude, it is possible to continue to maintain a sense of normalcy for the child, the caregivers, and the family. ISN

Patient and Caregiver Stories about Juvenile Scleroderma

Allen's Mom: Son has Scleroderma With his tightness of skin he has a very hard time bending, walking up the stairs and for the most part he cannot walk for more than a few minutes without his legs giving out…

Anita G: Localized Scleroderma This also started as a small spot that I thought was insignificant, but as time went on, it grew, along with my symptoms…

Chris S: Mother of Linear Morphea Patient Whatever it was, I knew it should not be there…

More Juvenile Scleroderma Patient and Caregiver Stories…

Go to Localized: Linear Scleroderma

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.