My name is Vivian, and I am seventeen. About two years ago I was diagnosed with this illness. Now I am in treatment, but I would like to find other people to talk to, especially about this.
Truth is that for now my health hasn't been too affected, but emotionally it becomes quite hard. Especially since it is very difficult to find out you have something you didn't even know existed, and just overnight.
I would like to talk to someone that can guide me through this, and I would also like to help as much as I can.
My general doctor recommended I should eliminate some food from my diet, and this has helped me greatly.
Vivian Email: [email protected] Story edited 06-21-07 JTD Story posted 07-28-07 SLE ISN Senior Artist: Sherrill Knaggs Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS (Español/Spanish) Vivian: Morfea ENGLISH: Juvenile Scleroderma Morphea Morphea Stories Medical: Diseases and Symptoms Scleroderma Experts (Worldwide) Sclero Forums *Online Support Group!* Symptoms of Systemic Scleroderma Types of Scleroderma What is Scleroderma? |
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.