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Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

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By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Vivian: Morphea

Spanish

My name is Vivian, and I am seventeen. About two years ago I was diagnosed with this illness. Now I am in treatment, but I would like to find other people to talk to, especially about this.

Truth is that for now my health hasn't been too affected, but emotionally it becomes quite hard. Especially since it is very difficult to find out you have something you didn't even know existed, and just overnight.

I would like to talk to someone that can guide me through this, and I would also like to help as much as I can.

My general doctor recommended I should eliminate some food from my diet, and this has helped me greatly.

To Contact the Author

Vivian
Email: [email protected]
Story edited 06-21-07 JTD
Story posted 07-28-07 SLE

ISN Senior Artist: Sherrill Knaggs
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
LINKS
(Español/Spanish) Vivian: Morfea
ENGLISH:
Juvenile Scleroderma
Morphea
Morphea Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums *Online Support Group!*
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Walter: Father of Scleroderma Patient
 

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)