SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

(English) Veronica: Sjogren's Syndrome

(Italiano) Veronica: La Sindrome di Sjogren

Vines by Shelley Ensz I am a thirty-year-old woman, and I have been suffering for three years from Sjogren's Syndrome with highly positive anti-SSA antibodies. I am being treated with cortisone, and about a year ago a monoclonal immunoglobulin peak appeared in my blood. I continue to take the same cortisone treatment although recently, after a stressful episode, my symptoms worsened, with pain in my right parotid gland. This resolved after the dose of steroid was increased.

I am very worried about my condition. I am a member of our local association, but this has not been a great help. I would like to get in contact with other colleagues (in fact, I am a doctor) who could help me and, above all, share with me their experiences.

I would also like to have information about the possibility of getting pregnant, and about the likelihood of developing a malignancy.

To Contact the Author

Email: [email protected]
Story posted 1-30-02
Story edited 3-30-02
Story translation by Kevin Howell posted 6-18-02
Story edited VH1: JTD 9-9-03

Story Artist: Shelley Ensz
Story Editor V1: Judith Devlin
Pregnancy and Scleroderma
(Italiano) Veronica: La Sindrome di Sjögren
(Italiano) Sclerodermia dalla A alla Z
(Italiano) La Sindrome di Sjogren
(English) Sjögren's Syndrome
Voices of Scleroderma Volume 1

This Story is Featured in Voices of Scleroderma Volume 1

Voices of Scleroderma Volume 1 The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!

ISN Translator: Kevin Howell

Kevin Howell is the ISN Translator (Italian to English) for this story. He is a Clinical Scientist for Professor Black at the Royal Free Hospital in London.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Vivi: Facial Scleroderma (Linear/Morphea or Parry Romberg's)

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.