Hi. I am in the process of discovering what scleroderma is all about.
I was diagnosed as a child with a strange skin complaint, but was given no information about it. My mother does not remember what she was told either so she has been of no help.
Then about two years ago I discovered more patches on my skin that seemed to be spreading. The skin specialist I saw gave it the name scleroderma or morphea. The treatment is cortisone cream applied twice daily. But I still do not know anything about the disease.
I am in my early forties, have eight children, and want to learn what I can about morphea. This is why I am sharing my story.
Toni New email address needed 01-20-05 SLE Old Email Prefix: hailstone Story posted 10-4-02 Story posted 10-9-02 Story edited 7-25-03 SLE ISN Senior Artist: Sherrill Knaggs Story Editor: Saba Sadiq |
LINKS Cortisone Morphea Scleroderma PDF Brochure: What is Scleroderma? |
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Saba Sadiq is the ISN Story Editor for this story.
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: