Stories in English: T-U
Takeya: Morphea Scleroderma I thank God that it's not harmful to me or the baby…
Tami: Morphea Scleroderma I have gotten used to the stares everyone casts my way because in their eyes I am different. Unique, I guess…
Tammy: Mother of Son with Linear and Morphea Scleroderma Brandan has linear scleroderma on his right side and morphea on his chest…
Tammy M: Linear Scleroderma and Vitiligo When I was first diagnosed there was no such thing as the Internet. I always felt that my family and I were the only ones in the world who knew what scleroderma was…
Tammy W: Morphea Scleroderma I am thirty-one years old and I have just recently been diagnosed with Morphea…
Tara: Systemic Scleroderma I was diagnosed with scleroderma in January 2000, but I have had it since April 1997…
Tata: Morphea The skin from my ankle all the way up to my knee was completely fused to my bone…
Tata P: Diffuse Scleroderma I am thirty-two years old, and I have been suffering this illness since I was nine…
Tatita: Morphea (Puerto Rico) A year ago I had gallbladder surgery, and after the procedure I began to experience back and arm pain, and sometimes strong headaches…
(Español/Spanish) Tatita: Morfea (Puerto Rico) Hace un año me operaron de la vesícula, y después de la operación comencé a tener dolor en la espalda y los brazos, a veces también dolor de cabeza fuerte…
Teena: En Coup De Sabre My mother and I went to Johns Hopkins Hospital. They did what was called 'Grand Rounds' where about fifty doctors were looking at me taking pictures and videotaping me…
Teresa: Scleroderma I was just diagnosed a few hours ago. Tears are streaming down my face…
Terri: Subcutaneous Morphea I was finally diagnosed with deep morphea (or subcutaneous morphea) around mid February 2007, after having a biopsy…
Terry: CREST I was told that I have CREST by a doctor who saw me in a Workman's Compensation case…
Terry E. (Mojoy the Clown): Morphea Profunda Linear Scleroderma My right lower leg started to swell and the ankle grew big. It hurt all the time…
Terri Jo: CREST I am also a Registered Nurse and know all too well how much one's mind can affect healing and wellness but I find myself stressed more than usual about this thing…
Tess: Scleroderma En Coup de Sabre I have just had reconstructive surgery for en coup de sabre, which is a form of linear scleroderma…
Tessa: Morphea The nurse just told me that I have morphea and knew nothing about it and she told me to look online for information…
Theon: Scleroderma and Pneumothorax This is very hard for me, because I was a very active woman, and then suddenly I am totally and completely disabled…
Theresa C: CREST/Limited Scleroderma I am fifty years old and I was diagnosed with CREST in September of 1996…
Thomas: Brother of Morphea Patient We just do not know anything about it and my mom is really sad because my sister is only seven…
Tina G: Systemic Scleroderma and Interstitial Cystitis Interstitial Cystitis is a bladder disease. The symptoms are frequent urination, pain and pressure…
Tina Lech: Diffuse Scleroderma, Fibromyalgia, Pineal Cyst I was a very active, alive, mother of three…
Tina M: Keloids My husband calls them my battle scars or unfinished tattoos…
Tommi: Diffuse Scleroderma I would like to talk with others who have heart involvement…
Toni: Spouse of Stem Cell Transplant Survivor Jeff is now seventeen months past his stem cell transplant and to look at him you would never know he was sick…
Toni H: Morphea Scleroderma I was diagnosed as a child with a strange skin complaint, but was given no information about it…
Tonya: Morphea Scleroderma I am wondering if it will help to hide the brown spots by tanning?
Tony B: Systemic Scleroderma with Pulmonary Fibrosis, Pulmonary Hypertension and Raynaud's It has taken me some time to come to terms with this disease…
Toot: Atrophoderma The only comfort that I get is that my doctor told me that it should never spread to my face…
Tore: Linear Scleroderma However, as time went by, the patch extended, and the hardening, instead of going down, got worse, involving more and more parts of my leg, all the way to my knee…
Tori: Localized Juvenile Scleroderma This is not the first rare disease that I have had…
Tracie S: CREST with Fibromyalgia I ache from head to toe, am cold all the time, feel like I am in a fog, in general I am just not up to par…
Tracy: Undiagnosed Please share your story with me. I am really tired of waiting and wondering…
Trish: Spouse of a Diffuse Scleroderma Patient My husband was diagnosed with scleroderma in June of 2000…
Trudy Rose: Mother of Daughter who has Scleroderma I have been the caregiver for her when she needed me…
Tui: Limited Systemic Scleroderma I am wondering whether such treatments will be ongoing?
Tutter H: Lichen Sclerosus Since this is an autoimmune disorder, I have no idea how long this relief will last or if it will completely go away…
Tyler: Scleroderma, CREST Syndrome It is really confusing and the doctors say it is very rare for people my age to have it…
Stories in English: U
No stories in this section yet.
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:
7455 France Ave So #266
Edina, MN 55435-4702 USA