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Sylvia: Surviving Mother of Scleroderma Patient

By this time her fingers were stiff and turning black.

My daughter Sandra took sick in 2001, and the doctors could not come up with what was wrong with her. They treated her for anemia and released her from the hospital.

In November of 2002, she became ill again and this time they told her it was scleroderma. By this time her fingers were stiff and turning black. She was admitted to Broward General Hospital in Florida on December 5, 2002. She died April 8, 2003 from advanced scleroderma.

She had this disease from 2001 without the doctors realizing it.

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ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: