I was diagnosed with scleroderma three years ago. I am having a hard time understanding my illness, and its symptoms. I am in a stage of exploration and self-discovery. I have tried to find different therapies and sometimes I feel fine, but then I have a crisis, I fall, pick myself up again, time and time again.
I am thirty-four, with two children, one is seventeen and the other eleven. I have a lot to fight for, I am mother and father to them.
I would like to find someone to talk to, that understands what is happening to me without pitying me, because that's what I see in people's eyes, pity, perhaps sometimes I even see it in myself.
Cheers and good luck.
Soledad Email: csoledad [email protected] Story edited 06-13-2010 JTD Story posted 07-01-2010 SLE Story Artist: Shelley Ensz Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS Español/Spanish: (Español/Spanish) Soledad: Paciente con Esclerodermia Difusa con CREST Acerca de la Esclerodermia English: CREST Syndrome CREST Syndrome Stories Diffuse Scleroderma Diffuse Scleroderma Stories Emotional Adjustment: Coping Emotional Adjustment Stories Medical: Diseases and Symptoms Scleroderma Experts (Worldwide) Sclero Forums Symptoms of Systemic Scleroderma Types of Scleroderma What is Scleroderma? |
ISN Translator and Editor: Alba León
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Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
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