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Soledad: Diffuse Scleroderma with CREST

I am having a hard time understanding my illness, and its symptoms.

Two Red Flowers by Shelley EnszI was diagnosed with scleroderma three years ago. I am having a hard time understanding my illness, and its symptoms. I am in a stage of exploration and self-discovery. I have tried to find different therapies and sometimes I feel fine, but then I have a crisis, I fall, pick myself up again, time and time again.

I am thirty-four, with two children, one is seventeen and the other eleven. I have a lot to fight for, I am mother and father to them.

I would like to find someone to talk to, that understands what is happening to me without pitying me, because that's what I see in people's eyes, pity, perhaps sometimes I even see it in myself.

Cheers and good luck.

To Contact the Author

Email: csoledad [email protected]
Story edited 06-13-2010 JTD
Story posted 07-01-2010 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
(Español/Spanish) Soledad: Paciente con Esclerodermia Difusa con CREST
Acerca de la Esclerodermia

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ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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