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Scott: Friend of Patient with CREST

She needs someone to talk to that is fighting her fight.

Back in 1970 or so, I saw this happy wonderful little girl at our neighborhood swimming pool. I fell in love and forty years later I still am.

I found her again, still happy, still wonderful and full of life. Only this time around she has an awful disease, CREST. She is newly diagnosed and only learned of it a year ago. One of her first doctors said she had five years to live. Why would he say such a thing? I have read story after story of people having CREST for decades.

It killed her son's way of life and did not do me much good either, yet this woman fights on and tells us not to worry. But when she is by herself she is so alone. She needs someone to talk to that is fighting her fight.

Believe me, this girl has given her all to this world and asked for nothing back. I am lucky and blessed to have known her.

If you could help please write her and maybe give her some more ammo to fight on. Her email is below. Thank all of you so much!

Keena's friend and now yours,

Scott

To Contact the Author

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.