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Sandy J: CREST

New Zealand

I am hoping I may be able to have contact with any person who has CREST with skin involvement, and who especially has the problem with stomach dysmotility.

I have had an ileostomy for two years and a feeding peg for just over one year, and would appreciate comments from any person who also has one or both of these problems.

I can eat a small bowl of cereal for breakfast, a plain yogurt and tin of ensure for lunch, but the rest of the days feeding is done via the feeding pump.

I also have Raynaud's quite badly, fibromyalgia and osteoarthritis.

I look forward to any response.

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ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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