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Marina O: Lichen Planus

I have a bald patch in my head where hair will not grow again, and the illness is still advancing.

I am a twenty-seven-year-old, and about a year ago I went to a dermatologist because I had pus coming from my scalp, and it covered my head. I got a biopsy, they told me I had lichen planus, and that the only solution for me was to apply a strong medication with cortisone base.

So I do not trust doctors anymore, I have visited at least six and each one has given me their own therapy, mostly experimental treatments and none of them really useful.

In the meantime I have a bald patch in my head where hair will not grow again, and the illness is still advancing, without anyone being able to tell me how to stop it.

I am asking you to please help me understand what I can do, and whom to turn to, because I am not so sure that the doctors I have seen so far understand what the illness is really about.

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ISN Translator and Editor: Alba León

Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.

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Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.