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Liliana: Morphea

Argentina

Hello, my name is Liliana and I was diagnosed with morphea scleroderma seven years ago. At first the illness was completely unknown to me. They performed several biopsies until they finally told me it was scleroderma. I have spots in my legs, hips, back and some in my arms.

In these years I have been living with the illness, I have learned the worst one can do is stay still, without doing any exercise. I have tried several routines but the one that works best for me is pilates which are exercises in flexibility, that really helped me a lot.

I would like to know more about my illness, whether there is a special diet I should follow, or if there's a new treatment. I hope someone can get in touch with me to chat, share advice and so on.

To Contact the Author

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: