Patient & Caregiver Stories Main Menu

(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

By Illness: Main List, Linear/Morphea, Systemic Scleroderma, By Symptoms

Lidia: Scleroderma


Abstract Butterflies by Shelley EnszMy name is Lidia. Discovering that I was ill with scleroderma was very difficult for me. I remember that day I was with my husband when the doctor talked to us about what my condition was, and how serious it was. Right there and then my life changed, and I was very sad, but thanks to the support of my family I have overcome this, and now I lead an almost normal life.

Sometimes however I feel sad and incapable of doing things, my temper has become volatile, and sometimes this is very annoying, but I believe and think that the Almighty will not abandon me, and that I will get through this, so help me God and all the people around me.

I hope you are given patience, and I know it is hard, but we must go forward and put up a fight, we shouldn't go back, not even to get some impulse. You know something? I have met a great doctor, and I thank God for each day he gives me. May the Almighty bless you.

To Contact the Author

Email: [email protected]
Story edited 05-09-09 JTD
Story posted 06-19-09 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Story Editor: Judith Thompson Devlin
Lidia: Sclerodermia

Emotional Adjustment: Coping
Emotional Adjustment Stories
Medical: Diseases and Symptoms
Scleroderma Experts (Worldwide)
Sclero Forums
Symptoms of Systemic Scleroderma
Types of Scleroderma
What is Scleroderma?

ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Liliana: Morphea

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
Email [email protected]. Disclaimer. Privacy Policy.