I am fifty-three years old, a wife, mother, grandmother, and a real estate broker in Nebraska. I was recently diagnosed with scleroderma, perhaps diffuse scleroderma, as the pigmentation is symmetrical on both arms.
I am glad to finally have an answer after years of tests with no results. I am interested in knowing more about the first indications of bowel, heart, and lung involvement.
I am presently on several antirheumatic medications, a sleep aid, and a drug to treat neuropathy (burning sensations.)
For the last three years, I have had positive RH factors; they are now negative. What has helped me most with the irritable bowel syndrome (IBS), believe it or not, is to have an instant breakfast shake every day.
I have a good attitude, a great husband, and a supportive and loving family. The hardest part of this was telling my family, as we knew someone my age who recently passed away from complications of systemic scleroderma.
Laura W. New email address needed. Old Email Prefix: nlpartners New email address needed 07-18-06 SLE Story posted 10-28-01 Story Edited 7-28-03 JTD/V1 Story Artist: Shelley Ensz Story Editor: Judith Devlin |
LINKS Raynaud's Irritable Bowel Syndrome Sjögren's Syndrome Types of Scleroderma |
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