I am the mother of a twelve-year-old boy. About a year ago he got a spot in his face, and at first I thought he had hit himself with something, since he is a bit clumsy. But when I saw that the bruise would not go away, I took him to the doctor and he sent me to a dermatologist, who, after a biopsy diagnosed linear morphea.
At first I did not think too much of it, because time went on and his condition remained the same, but now, after a year, everything has changed. What started as a bruise in his forehead, has come down to his nose, and his forehead has sunk a bit.
The dermatologist says it is not too important, and I get really worried when she says it will keep growing. She says that his face will keep on looking sunken because he is left without fat in that area.
To be honest I think it is very important. The medicine she has sent me is Lexxema to be applied whenever I see a red spot.
Please, if somebody could give me any tips of something I can do to really help my son, I would greatly appreciate it.
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
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