I don't know exactly what my type of scleroderma is, but I do know that I have been in a wheelchair for eleven months, and I don't see any progress. So I would like to know if, and when, I will be able to walk again.
Is there a way to find out if there is any hope for me? Living in these conditions is not easy, especially if you can't see the light at the end of the tunnel!
Klaas Email: [email protected] Story edited 03-17-07 JTD Story posted 04-05-07 SLE ISN Senior Artist: Sherrill Knaggs Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS (Español) Klaas: Sclerodermia da GVHD English: Difficult Diagnosis Graft-vs-Host Disease (GVHD) Medical: Diseases and Symptoms Symptoms of Systemic Scleroderma Types of Scleroderma What is Scleroderma? |
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: