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Kathy H: En Coup de Sabre Scleroderma

When I was five years old I got a small black line in my forehead.

Peach and Pink Roses by Shelley EnszMy name is Kathy, when I was five years old I got a small black line in my forehead, a spot, like a mole, so my parents were not too worried about it. When they saw that it was growing, they took me to a dermatologist.

After many studies, including a biopsy, and I was diagnosed with a form of linear scleroderma that is called en coup de sabre. This illness, according to my dermatologist, has reached its end, so after twelve years I have consulted a surgeon, because the illness affected my forehead and the left side of my nose, which looks deformed.

The surgeon did fat implants from the lower part of my abdomen into my forehead. He said that one surgery would not be enough because my forehead was very atrophied. I have financial issues and because of that I have only been able to afford the forehead surgery, I have to wait four months for the next one.

I am about to get a nose job; this is scary because they say my nose will not look perfect. I am more worried about the nose than the forehead, because the illness wore down a large section of the left side of my nose. I also lost my left eyebrow, I would like to know if there is something I can do to improve this situation. Thank you.

To Contact the Author

Kathy H.
Email: (Withheld by request)
Story posted 07-15-11 SLE

Story Artist: Shelley Ensz
Story Translator: Alba León
Espa ñol/Spanish:
Kathy H: En Golpe de Sable
Acerca de la Esclerodermia

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ISN Translator and Editor: Alba León

Alba LeonAlba León is the ISN Translator for this page. She is studying international relations in Mexico City.

Go to Kathy M: CREST (Limited Systemic Scleroderma)

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