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Kamlesh: Husband of Limited Scleroderma Patient

India

I am narrating the story for my wife, who has scleroderma which started seventeen years ago. I was very worried about her health as her skin color and consistency was changing. She was getting weaker day by day. I tried to get her diagnosed in every place of India but as it was in its initial stage no one was able to diagnose her.

All this started after the death of one of her close relatives. On 25 April 1998, she was diagnosed by a dermatologist with Limited Scleroderma. At that time her blood and urine lab reports were normal except she had a high ESR. She got treatment with methotrexate, multivitamin, antioxidant, iron tablets, bilovas, vitamin E, orchid cream, and aloe vera cream for skin. All this treatment continued until 2005, with some altering of the doses, a monthly consultation with her doctor and regular blood and urine check up tests. This treatment solved her skin problem but a pulmonary complication started.

On 8 March 2006, in a pulmonary function test, there was severe restriction and severe obstruction. On 17 March 2006, her tests showed positive ANA 4+, no anti centeromere antibody, T3 155.8 ng/dl,T4 7.5 micro g/dl, TSH 3.72 micro IU/ml, norm blood sugar, norm LFT, norm renal fn test, ESR 44, Norm ECHO except diastolic dis fn, X-ray PA view features of bilateral pulmonary opacity, on HRCT reticulonodular opacity with early honey combing bilateral lower zone and irregular opacity and fibroid strand bilateral upper and mid zone mostly on left due to interstitial lung disease (ILD). So her treatment was changed.

But now she is getting side effects from steroids of severe osteoporosis, right leg mono neuritis, and a dry cough which is not responding to steroid, and very frequent infections. So due to all this we need more information so I and my son, who became a doctor in 2009, will be waiting for any suggestions for further treatment for my wife.

To Contact the Author

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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