Stories in English: K
Kamlesh: Husband of Limited Scleroderma Patient (India) In a pulmonary function test, there was severe restriction and severe obstruction…
Kappy: Sister of Diffuse Scleroderma Patient So now, I offer my sister's story with the belief that it too will inspire the same hope I once found…
Karen: Mother of Generalized Guttate Morphea Patient I was so pleased to come across this web site to share our story…
Karen A: Morphea Scleroderma I am a thirty-four-year-old female who has been bounced around for two-and-a-half years from oncologists to rheumatologists…
Karen C: Daughter of Diffuse Scleroderma Patient I am thirty years old and I live in Chile. My father is Juan, he's fifty-two and suffers from diffuse scleroderma…
Karen G: Spouse of Scleroderma Patient My husband has scleroderma and we would like to know if anyone has ever had an Iloprost infusion…
Karen H: Eosinophilic Fasciitis I am experiencing extreme fatigue and muscle pain on a daily basis…
Karen M.R.: Diffuse Scleroderma and Fibromyalgia I was so glad she was there, because I sort of went into shock when the doctor said she was going to start me on chemo treatments…
Karen T: Daughter of Progressive Systemic Scleroderma Tubal feeding does not look scary, and it is not the beginning of the end; instead, it is a new beginning for her…
Karina: Mother of Morphea Patient The doctor says it will be under control, and that it is a good thing that it is localized and hasn't spread…
Karligash: Systemic Scleroderma (Republic of Kazakhstan) Young, beautiful, full of hope and expectations for my life, for happiness and love — that was me, nineteen years of age…
Kasey: Daughter of a Diffuse Scleroderma Patient The hardest part for my mother is accepting that she does have scleroderma and needs to face the facts about it…
Kasra: Son of Morphea Scleroderma Patient (Iran) Please help me. The doctor that we went to in 1990 is now dead, and the doctors in Iran do not have much information about this kind of disease…
Kate: Possible Scleroderma/Lupus Overlap At some point in that dreary winter month, I began waking up with swollen hands…
Kath: Systemic Sclerosis (Scleroderma) Moving to Spain has had a positive effect on my Raynaud's, but has had no effect, so far as I am aware, on my scleroderma…
Kathi: Scleroderma/Lupus I am forty-three years old and have not been feeling well for ten years…
Kathleen S: Eosinophilic Fasciitis I noticed that winter during gym, that when we did push-ups, I had to do knuckle push-ups because I could not straighten my fingers…
Kathy: Generalized Morphea Scleroderma I finally pressured another doctor for a referral to a dermatologist and had a biopsy done and was finally told morphea scleroderma…
Kathy Baker: CREST Scleroderma (Houston, Texas) This disease has been a roller coaster ride both emotionally and physically, but I know it could be worse…
Kathy Gaither: Mother of Juvenile Scleroderma Patient I decided that I was going to turn our negative experience with scleroderma into something positive for us and for other parents…
Kathy GR: Scleroderma Patient The doctor who had been doing the nerve blocks had told me I had scleroderma, but never mentioned that I needed to see a rheumatologist…
Kathy H: En Coup de Sabre Scleroderma When I was five years old I got a small black line in my forehead, a spot, like a mole, so my parents were not too worried about it…
Kathy M: CREST (Limited Systemic Scleroderma) If you do not have the right doctor, do not get furious, move on…
Kathy P: Localized Scleroderma I was diagnosed with Focal or Localized Scleroderma (Juvenile Scleroderma) at the age of eighteen months…
Kathy R: Localized Scleroderma I was diagnosed with Localized Scleroderma when I was six months pregnant with my son in 1965. It started at the time with blotches on my right arm…
Katia C: Sister of a Scleroderma Patient (Italy) She is in the acute phase of the illness, and she has a hardened skin, third degree, that has affected her hands, arms, chest and legs…
Katie: Morphea I developed morphea on my lower abdomen around the time I was twelve years old…
Katie P My dad is forty-three years old and he has been diagnosed with the rare kind of this disease…
Katie W: Morphea The worst part for me is that because I do not have a very severe case of it, I sometimes feel like it is not real…
Katy: Morphea Scleroderma It took nearly a year to get my diagnosis. The first two doctors told me I had ringworm…
Kay: Linear Morphea Scleroderma I saw a dermatologist at Mayo Clinic who included me in Grand Rounds where every dermatologist at the clinic got to see my patches…
Kaycee: Diffuse Scleroderma with Polymyositis The rheumatologist confirmed the diagnosis of diffuse scleroderma on my initial visit to him. Since then, I have had a muscle biopsy, which confirmed polymyositis…
Keenan: Surviving Son of Fibrosing Alveolitis Patient Dad passed away now almost four years ago. It still hurts knowing that I will never be able to ask his advice or listen to his corny jokes again…
Keith: Surviving Son of Scleroderma Patient In the fall of 1982 my mom was diagnosed with this dreadful disease and it caused kidney failure…
Keith H: Eosinophilic Fasciitis (EF) I have a rare skin disease called eosinophilic fascitiis, a skin and muscle disease which causes tightness of the skin, and sometimes a reddish coloration of the skin in areas…
Kelli: Morphea Scleroderma I am a twenty-six-year-old, married, mother of two girls in Texas. I was diagnosed with Morphea in the first grade…
Kellie: Overlap Scleroderma and Mixed Connective Tissue Disease (MCTD) I am so relieved to read about so many people who have had the same experiences…
Kelly: CREST (Limited Cutaneous Systemic Sclerosis) At first, the rheumatologist hinted that he felt my primary care physician was overreacting…
Kelly H: Linear Scleroderma I have linear scleroderma. It took years to diagnose, when I was around six years old; now I'm in my thirties…
Kendall: Morphea Scleroderma In August 2001, I found a small purple thing on my hip…
Keri: Undiagnosed I have been living with back pain, stomach problems and skin problems since I was a teen…
Kerrie: CREST Syndrome with Limited Scleroderma If I was not stressed before I went in, I certainly was then. I am going to get referred on to see someone different. Hopefully, I will be luckier second time around…
Keua: Possibly Scleroderma I finally decided to see my doctor when I could not even straighten my fingers without pain and discomfort and was feeling extremely lethargic…
Kevin: Undiagnosed Scleroderma, Lupus, Mixed Connective Tissue Disease, Rheumatoid Arthritis, etc.? All I do is live, sleep and breathe the pain in my hand…
Khai: Mother of Diffuse Progressive Systemic Sclerosis Patient From that time until now, scleroderma has dictated our lives. The disease has attacked all lobes of the lungs on the right side…
Kiara: Morphea Scleroderma (Italy) My name is Kiara, I am nineteen years old and I have had Localised Scleroderma (Morphea) for fourteen years…
Kichy: Morphea Scleroderma I am a thirty-four-year-old professor at the Autonomus University of Chihuahua. A month ago, I was diagnosed with localized morphea…
(Spanish) Kichy: Esclerodermia Morfea Tengo 34 años de edad y soy profesora en la Universidad Autonoma de Chihuahua. Hace un mes fui dignosticada con esclerodermia morfea…
Kim K: Mother of Morphea Patient The dermatologist said they hoped this medicine would help the morphea stop growing. So far it is still growing. I am now worried that it is starting on her forehead…
Kimmy: Morphea My morphea started off as a little bump on my stomach. So I went to a surgeon and he said that is not a cyst, it is a disease…
Kirasia: Diffuse Scleroderma (Italy) I have been on sick leave for around twelve months in the last three years, and I risk a fifty percent reduction of my salary, which would be a big problem as I live on my own…
Klaas: Scleroderma Graft-vs-Host Disease (GVHD) So I would like to know if, and when, I will be able to walk again…
Kon: Lichen Sclerosus et Atrophicus The doctor told me to use tacrolimus ointment and take plaquenil pills. I had an improvement the first two months, but the condition still remains…
Krisha S: Multiple Autoimmune Condition I have multiple sclerosis (MS), fibromyalgia, and Stiff Person Syndrome…
Krissy: Systemic Scleroderma/Stem Cell Transplant Patient Our home is like a hospital. We have oxygen tanks for when I need extra help breathing, and a lovely kangaroo pump which is how I get my continuous feeding…
Krista: Scleroderma, Polymyositis, Vasculitis Many of you probably know that I have translated "SCLERO.ORG" into my language, Romanian…
Krista: My Caregiver's Story All those years beside him, seeing him suffering, being frustrated about the fact that I could not do anything to help him…
Kristen: CREST Scleroderma I thought I was going crazy. I did not know whether to cry over the diagnosis or feel relieved that I was not crazy…
Kristi U: Systemic Scleroderma We sold our motel business because it hurt me so bad to work each and every day…
Kristy C: Generalized Morphea The only place where I do not have any morphea is my face, which I am very thankful for…
Krys: Morphea Scleroderma I am still not comfortable with the scar but I have been free of scleroderma for quite some time…
K. Thompson: Daughter of Scleroderma Patient He had been having problems with his heart and had to have stents put in for blocked arteries…
Kym: Diffuse, CREST Scleroderma, Lupus and Fibromyalgia It all started with Raynaud's in my fingers and toes when I was about nineteen years old, in 1979…
Kym P: Morphea It started almost seven years ago, when I developed an odd looking bruise about the size of a quarter on my shin. The next couple of years it slowly changed…
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:
7455 France Ave So #266
Edina, MN 55435-4702 USA