(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

Jane D: Linear Morphea (En Coup de Sabre)

I am a bit confused as I was told it is rare but my daughter, six months ago, also found dents in her head.

Hi, my name is Jane, and I was diagnosed with linear morphea en coup de sabre February 2007.

I first noticed a dent in my head November 2005, so I went to a doctor and he thought it was an aging process. Still a bit concerned about it, three months later in February 2006, I went to another doctor to be told the same thing, aging process. Two months later in April, I was seeing another doctor about something else so I thought I would just ask him as well. He again said the same, which made me feel good.

In August 2006, I found another dent in my head, but this one was deeper and longer and just to the left of the first one. I went to another doctor and straight away she said we will do some tests. I had a blood test and an X-ray which came back fine, so she made an appointment for me to see a dermatologist.

On November 17th I went to see the dermatologist. He thought I had linear morphea (en coup de sabre) but said I needed to have a biopsy. I had that on November 22nd, and he said it was fine but he also wanted to make an appointment for me to attend the problem clinic at the hospital so twelve to twenty other dermatologists and doctors could study my head and ask questions.

In February I attended the clinic. After they had all seen me they had a meeting to discuss what they thought. That night my dermatologist called me and said that I do have linear morphea (en coup de sabre). He said that at this stage we do not have to start any treatment but he wants to see me in four months. I have an appointment for the tenth of August.

I am a bit confused as I was told it is rare but my daughter, six months ago, also found dents in her head. I meant to ask about that when I went to the problem clinic but forgot all about it. So I have made my daughter, Robyn, an appointment the same time as me and hopefully we can get some answers then.

I think my major thing is I need to know what can happen to me as I am still unsure and I keep tossing things around in my head and just cannot seem to stop thinking about it. If I can get the answers I think I will be able to deal with it and maybe not think about it so much.

I also have some sharp pains, now and then, that shoot in the side of my head which makes me shut my eye as the pain goes from the side off my face to my eye, up to maybe a minute, then goes away.

Well, of course, then I start questioning myself. Does this have something to do with the disease or has it nothing to do with it at all? Who knows? If anyone has any answers I would love to know.

Well wishes to everyone.

To Contact the Author

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.