I have been suffering from scleroderma since 1990.
Currently, I take nifedipine, cortisone, aspirin, and calcium. For ten months of the year, I have infusions of Iloprost (prostacyclin) for three days per month, which I have to say has helped me a lot.
One needs to be steadfast and never lower one's guard. I thank all those people who help me to do my routine things every day.
Giò New email address needed 08-06-09 SLE Old Email Prefix: amatulla Story posted 7-26-01 Story edited 3-28-02 English translation posted 6-18-02 Story Edited 7-28-03 JTD/V1 Story Artist: Shelley Ensz Story Editor V1: Judith Devlin StoryTranslator: Kevin Howell |
LINKS (Italiano) Giò: Sclerodermia sistemica progressiva (Italiano) SCLERO.ORG (English) Scleroderma Voices of Scleroderma Volume 1 |
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
Kevin Howell is the ISN Translator (Italian to English) for this story. He is a Clinical Scientist for Professor Black at the Royal Free Hospital in London.
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