Hello, I am the mother of a five-year-old child who about six months ago was diagnosed with morphea, a previously unknown illness for me.
The only thing I know about it is what her doctor told me, namely that it has no cure. I would like to hear, if somebody can help me by telling me, how this is treated, or how can I prevent it from spreading.
I am desperate, and I do not know which doctor would specialize in this illness. I would be very grateful if somebody could send me an answer. Thank you very much.
Georgina Email: [email protected] Story edited 07-16-07 JTD Story posted 08-16-07 SLE ISN Senior Artist: Sherrill Knaggs Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS (Español/Spanish) Georgina: Madre de Paciente con Morfea ENGLISH: Juvenile Scleroderma Morphea Morphea Stories Medical: Diseases and Symptoms Scleroderma Experts (Worldwide) Sclero Forums Symptoms of Systemic Scleroderma Types of Scleroderma What is Scleroderma? |
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.