I am fifty-seven years old, and three years ago I was diagnosed with Sjogren's Syndrome but, in reality, I have been suffering from it for almost thirty years.Before the final diagnosis, my doctor sent me for numerous specific tests, after which he drew his conclusions.
Ten years ago, I had autoimmune pericarditis. I suffered so much! I took various medicines, but the problem did not clear up.
Three years ago, I underwent a pericardectomy and I hoped that everything would be resolved; instead I continue to have chest pain and I still can't cope without taking steroids for it. I have had salivary gland biopsies. I am suffering from rheumatoid arthritis, and I have serious problems with my eyes. The lack of tears has caused inflammation of the corneas. I have strong pain and intestinal problems, all due to Sjogren's Syndrome. I often get tired when I walk a bit quickly or after any effort.
Currently, I am under the care of an immunologist at Niguarda Hospital in Milan, and I am taking many medications including painkillers when needed. Despite all these problems, I nonetheless go forward with the hope that a treatment for this disease will be found.
Franco Email: [email protected] Story posted 1-02-01 Story edited 3-25-02 Story translation by Kevin Howell posted 6-18-02 Story edited VH1: JTD 9-9-03 Story Editor V1: Judith Devlin |
LINKS (Italiano) Franco: Sindrome di Sjögren (Italiano) Sclerodermia dalla A alla Z Sjögren's Syndrome Rheumatoid Arthritis Voices of Scleroderma Volume 1 |
The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!
Kevin Howell is the ISN Translator (Italian to English) for this story. He is a Clinical Scientist for Professor Black at the Royal Free Hospital in London.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
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