I am sixty-one years old, and I discovered I had this illness eleven years ago. Most likely I had it two years before, but nobody understood what was wrong.
For ten years I went to the city of Vercelli to get treatment and I felt quite well, but of course I didn't really know what was happening to me. I am now following treatment closer to home.
I don't know what else to say at this moment, because I am absolutely scared of asking why so many things are happening to me at the same time. I am depressed to the point that when the doctors talk, I do not understand a word.
I thought about writing, perhaps someone here can understand what I am going through.
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.