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Elizabeth O: Linear Scleroderma

I am afraid also because it goes through my left eye, which I see becoming smaller.

I was diagnosed with linear scleroderma around six years ago. Initially they said it was solar lentigo, after a biopsy. Afterwards the diagnosis changed to lupus and finally, after more tests, a specialist diagnosed me with linear scleroderma (en coup de sabre).

I have it in my face and neck; it begins in the left side of my forehead, ending in my chin and I have a dark spot on the right side of my neck. People usually think it is the result of a car accident, since it is dark and deep. It is uncomfortable to have to explain my illness to others, but I must due to my work. I had a special exam and they told me that the illness has ceased, but sometimes I feel worse, as if the spot were becoming darker and deeper.

I am afraid also because it goes through my left eye, which I see becoming smaller. Also, I was sent to an aesthetic specialist, who told me that if I had cosmetic surgery to put fat in the depressed areas and particularly in the forehead, the result would not be flattering, and so I declined.

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ISN Translator and Editor: Alba León

Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.