I was diagnosed with this illness eighteen months ago, and up to now my problems have only gotten worse. I am getting ulcers on my fingers and toes, and sometimes my hands turn either clear black or whitish.
I have a low income, and I was fired from my job since I cannot work as I used to.
I am searching for more information on this illness and I would like to know whether it is permanent or if I can find something that cures me.
Thank you very much.
Elizabeth Email:Withheld by Request Story edited 06-26-06 JTD Story posted 08-04-06 SLE ISN Senior Artist: Sherrill Knaggs Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS (Español/Spanish) Scleroderma (Español/Spanish) Elizabeth G: Esclerodermia Difusa Progresiva (English) Diffuse Scleroderma (English) Diffuse Scleroderma Stories (English) Digital Ulcers |
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.