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Doreen: Mother of Morphea Scleroderma Patient

My daughter Corinne was diagnosed when she was six years old.

My name is Doreen and my daughter Corinne was diagnosed with morphea when she was six years old.

She had six round, hard white patches on her back. They were treated with cortisone tape, which I cut to fit the patch at night before she went to bed.

In time the spots softened, but when the pigment returned it was much darker than her normal skin tone,and her back appears to look scarred. She is now twenty-two, and is still self-conscious of how her back looks, especially in the summer when everyone is wearing a bathing suit.

Her dermatologist has since retired and we are currently looking for someone knowledgeable in this disease. Lately she has been complaining that the muscles in her back hurt. We are concerned that the morphea is doing something to cause this discomfort, and hope to find a treatment, if that is the case.

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SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.