Donato: Systemic Scleroderma with Raynaud's
Italy
My name is Donato. I discovered I am affected by this illness a year ago, following problems with my hands, where I lost sensibility and they got swollen in a particular way when it was cold. I checked into a specialized centre at the Bari hospital, and after several controls I got diagnosed with this illness.
At the beginning I didn't know what it was, but afterwards I got informed and I realized how serious it was. Right now I am following a treatment with Endoxan, Medrol, Trental, Pantorc, Cardirene.
I wrote to you for a recommendation from a doctor, I would like to know whether this is the right treatment since I have compromised my lungs to some extent, (bronchiectasis) and my esophagus only at the end.
Thank goodness I am fine, and the only problems are in my hands and the continuous coughing. Thank you.
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ISN Translator and Editor: Alba León
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Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.