(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

Clod: Raynaud's Syndrome

Italy

Hello, I am a twenty-year-old girl and since I was thirteen I have always suffered from the cold, so much so that my hands and my feet became purple in the true sense of the word, afterwards white and later red.

There were times when it was so bad, I didn't feel my hands and feet anymore. I tried on all types of gloves but nothing worked.

Also my nose and my ears became gelid (extremely cold or icy) with very little cold. It was enough for my body to feel the wind blowing for this to begin. Sometimes this would happen also during the summer. My doctor diagnosed me with Raynaud's Syndrome.

I feel better by knowing I am not the only one who has it, at least there is someone that can understand me. Some people actually are shocked when they see my purple hands.

To Contact the Author

ISN Translator and Editor: Alba León

Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

The most important thing in the world to know about scleroderma is sclero.org!