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Caroline: Niece of Scleroderma Patient

Australia

My story is a sad one. My aunt has had her scleroderma for nineteen years and now things are getting worse for her. She was in a hostel and now she is in St. George Hospital trying to get rid of a clot on the left side of her heart.

We are trying to get her into a nursing home, but they seem to think this is all in my aunt's head. But scleroderma is a disease that will not go away. I am her only next of kin as her sister is in a hostel too. Of course her sister is missing her, but we have to look for a nursing home.

What does it take for someone to help with our problems?

I am very sad that nothing can be done about this and I am getting worried about her. I do not think she will be coming to the hostel, but we will not know until they do more tests and I do not how much more testing that she can handle.

I hope this can be of some help to others. I will close now as it is sad.

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ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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