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Brenda: Limited Scleroderma, CREST, and Fibromyalgia

What am I to expect?

I was diagnosed with Limited Scleroderma, Raynaud's phenomenon, and CREST Syndrome on October 2, 2001. I am fifty-six years old, married with two grown children (a boy and a girl), and a grandson.

At this point, what I know about this disease is what I have found on this website. This is a wonderful site for people. I feel much better mentally for being in the know.

I have been sick for five or six years, telling doctors how much pain I have and that my fingers are sensitive to cold. I went to three doctors in six years and finally I was referred to a specialist.

I am new to this so I do not have a lot of information to contribute. At this time, my doctor has me on medication for the Raynaud's, and has warned me to stay warm at all times.

~ Update - November 2001 ~

I went back to the doctor in October and was told I also have fibromyalgia. I have irritable bowel syndrome (IBS), sleep apnea, thyroid problems, and diabetes. Maybe this information will help with statistics. It seems lots of people have IBS and sleep apnea before symptoms of scleroderma.

I am reading some things online that are frightening. What am I to expect?

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This Story is Featured in Voices of Scleroderma Volume 1

The story on this page is featured in the top-notch Voices of Scleroderma Volume 1 which features articles by top scleroderma experts, including Dr. Joseph Korn, as well as 100 true patient and caregiver stories from this website! The book delivers excellent information and support for scleroderma patients and caregivers. It's a great way to inform family and friends about scleroderma, too!

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

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