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SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.
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Blanca: Morphea

It has been very painful emotionally watching it just takes over my body with no recourse to find a cure.

Snowflake Flower by Sherrill Knaggs, ISN Artist I was diagnosed with minor morphea about a year ago in 2005. I had the red-brownish skin tone on the side of my right hip and it gradually spread to the lower back to the front of my leg.

This year, I am noticing patches on my shoulder, occasionally itch and circular hard skin texture on my thighs and the back of my leg.

It has been very painful emotionally watching it just takes over my body with no recourse to find a cure. I have tried to keep myself together, and ignore that it is there but still know what is new on my skin.

My dermatologist has not found a cure or a medicine to slow the new skin disorder. I only hope that it will slow down.

To Contact the Author

Blanca
New email address needed 08-06-09 SLE
Old Email Prefix: maxnblanca
Story edited O8-19-06 JTD
Story posted 10-12-06 SLE

ISN Senior Artist: Sherrill Knaggs
Story Editor: Judith Thompson Devlin
LINKS
Morphea
Morphea Treatments
Morphea Stories
Scleroderma Experts
Types of Scleroderma
What is Scleroderma?

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill KnaggsSherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Story Editor: Judith Thompson Devlin

Photo of JudithJudith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

Go to Bob: Pulmonary Fibrosis
 

SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)