(English) by First Name: A B C D E F G H I J K L M N O P Q R S T U V-Z

By Language: French   German   Greek   Italian   Polish   Romanian   Russian   Spanish   Turkish

Bernarda: Mother of a Localized Morphea en Coup de Sabre Patient

Chile

My daughter suffers from this illness, she is only twelve years old. She was diagnosed in October 2006.

It was a terrible blow for me. She still is not fully conscious of what is happening, while I am devastated.

A month ago she started her treatment with folic acid and methotrexate.

It saddens me to see her desperation since her alopecia is becoming more and more pronounced.

I have a low income, since I work as a rural teacher, here in Chile. I really am desperate.

To Contact the Author

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: