I was diagnosed in 1985 with systemic scleroderma and Raynaud's disease.
It has affected the esophagus, fingers, toes and bowels, and recently I started having mini strokes.
I have recently gone on disability insurance. I am in the process of being tested for these strokes I am having, and I have to admit I am really scared. Is there anyone out there going through the same thing?
I could really use an understanding email buddy right now, so please feel free to write to me.
Barb New Email: [email protected] Story Posted 09-28-00 Story edited 07-17-03 SLE Email comment added 07-17-03 New email added 11-03-04 SLE Story Artist: Shelley Ensz |
LINKS Bowel Involvement Diffuse Scleroderma Disability Resources Esophagus Involvement Raynaud's Types of Scleroderma |
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.