I have linear scleroderma. I have had it for a little over five years and I am only twelve. I have level 2.
It is hard to find people who understand my condition. I wish that more people could be informed about this type of disease.
Angel Email: Withheld by request Story edited 03-30-05 Story posted 03-31-05 SLE ISN Senior Artist: Sherrill Knaggs Story Editor: Judith Devlin |
LINKS Juvenile Scleroderma Linear Scleroderma Types of Scleroderma PDF Brochure: What is Scleroderma? |
Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: