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Ana Lucia: Diffuse Scleroderma

I want to tell everyone who has something similar that you shouldn't give up, you should go ahead, life is beautiful.

Hello, my name is Ana Lucía. I am twenty years old and I was diagnosed with diffuse systemic scleroderma a year and a half ago. I have been on a treatment with corticosteroids and cyclophosphamide for roughly the same amount of time.

I have to go to the hospital every month for an IV treatment. Thank God everything is better now, it is under control. Perhaps, if it is God's wish, by the end of the year I won't have to do the IV treatment anymore, but I will have to keep on taking pills. But I want to tell everyone who has something similar that you shouldn't give up, you should go ahead, life is beautiful.

Thanks for listening.

To Contact the Author

ISN Artist: Sherrill Knaggs (In Loving Memory)

Sherrill Knaggs, ISN Artist, created the digital photo to illustrate the story on this page. Sherrill lived in New Zealand. Her story was featured in ISN's book, Voices of Scleroderma Volume 2.

ISN Translator and Editor: Alba León

Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.

ISN Story Editor: Judith Thompson Devlin

Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: