About two years ago I went to a rheumatologist because I had some problems in my legs and hands. My legs would become really tense and my hands would turn purple without apparent reason. When I went to the doctor, he sent me to get a series of analysis to rule out lupus or other similar illnesses.
My great mistake was not taking these tests seriously. I got them done, but I didn't go back to the doctor since I was already feeling better and the pain and swelling had almost disappeared.
Yesterday, after two years I went back to the doctor, I told him I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite. He ordered a new set of analysis, but this time it is only to see how advanced my scleroderma is.
I am not scared by the illness in itself, however I am worried because the medicine for this illness in my country, Perú, are, unfortunately, only given to those people with insurance from the Peruvian state. I can no longer sign up for this health care system as the registry is completely closed, and so I cannot have the adequate treatment for my illness since, as I repeat, this medicine is only given to the Peruvian health care system and it is not sold in any pharmacy in my country.
Alana Email: [email protected] Story edited 04-25-08 JTD Story posted 11-14-08 SLE Story Artist: Shelley Ensz Story Translator: Alba León Story Editor: Judith Thompson Devlin |
LINKS Español/Spanish: Alana: Paciente Nuevo con Esclerodermia English: Microstomia (Small Mouth) Lung (Pulmonary) Involvement Lung (Pulmonary) Stories Skin Fibrosis Skin Fibrosis Stories Medical: Diseases and Symptoms Scleroderma Experts (Worldwide) Sclero Forums Symptoms of Systemic Scleroderma Types of Scleroderma What is Scleroderma? |
Alba León is the ISN Translator for this page. She is studying international relations in Mexico City.
Judith Thompson Devlin is the ISN Story Editor for this story. She is also lead editor of the ISN's wonderful Voices of Scleroderma book series!
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