Stories in English: A
Adriana: Daughter of Scleroderma Patient My mother is the most beautiful woman I know…
Aileen: CREST Scleroderma Oh, the wonderful feeling to have a doctor sit there and tell you that you are not imagining things…
Ainhoa: Morphea I do not have most of the apparent and most common symptoms…
AJ Miller: Linear Scleroderma I have had Linear Scleroderma since 1968, when I was seven years old…
Alana: Scleroderma (Peru) I cannot open my mouth completely, I have lost strength in my hands, I have breathing problems, my face looks different, my skin is really tight and I have lost my appetite…
Alegria: Fibromyalgia (Israel) My hands, legs and shoulders hurt in a very distinctive manner; my fingers are paralyzed with pain, and sometimes I get strong headaches…
Alda: Raynaud's Syndrome (Italy) Fortunately I am going through menopause and I am having hot flashes. But in between hot flashes I feel like I'll die from the cold…
Alex: Localised Scleroderma (Italy) I am a thirty-four-year-old woman and I have been suffering from localised scleroderma for about twenty years…
Alex: Mother of Daughter with Morphea My seven-year-old daughter has been diagnosed with Morphea…
Alex U: Swollen Salivary Gland (Italy) I have spent many months with the swelling on the left side of my face, even my ears, and I think I am developing osteoarthritis…
(Italiano) Alex U: Ghindola Salivare Allungata (Italia) Inoltre ho passato molti messi con la parte sinistra gonfia: l' orecchie, niente il menisco infiammato con una piccola artrosi…
Alexandra: Scleroderma My scleroderma symptoms arrived in great style: reflux, itchy swollen skin, joint and muscle pain and tiredness. Plus hundreds of little red spots (telangiectasia). My mouth was tight and getting smaller too…
Alicia: Linear Scleroderma My doctor said the people who are looking at me and seeing the scars are the ones who need healing, and that I should pray for them…
Alicia B: Localized Morphea with possible Parry Romberg Syndrome The doctor kept saying something had eaten away at all the fatty tissue and the muscles which left it just skin, blood, bone, and nerve so when you look at it, it looks like I have dirt on my face and a gaping hole to go with it…
Alina: Scleroderma CREST Syndrome This site is very helpful as I have been reading articles of people with my condition and can relate to what they are going through…
Allen's Mom: Son has Scleroderma With his tightness of skin he has a very hard time bending, walking up the stairs and for the most part he cannot walk for more than a few minutes without his legs giving out…
Amanda: Diffuse Scleroderma Systemic Sclerosis I am thirty-nine years old and was diagnosed with diffuse scleroderma systemic sclerosis in August 2007…
Amber: Morphea with Possible Systemic Sclerosis My story with Morphea started two years ago. I went to a tanning salon…
A.M. Keyes: Surviving Daughter My father died on February 9, 2002 from pulmonary fibrosis, a complication of scleroderma…
Amy: Daughter of Systemic Sclerosis Patient: What is Scleroderma? Imagine for me if you would that in certain areas of your body the skin has begun to thicken and harden…
Amy B: Limited Scleroderma with CREST I am a full time pharmacist in a pediatric hospital. In February or March of this year, I began to be very intolerable of the cold…
Ana Lucia: Diffuse Scleroderma I am twenty years old and I was diagnosed with diffuse systemic scleroderma a year and a half ago…
Anastasia: Surviving Granddaughter of a Diffuse Scleroderma Patient Traveling to a different hospital finally we heard scleroderma…
Andie Friend: Morphea I want to share my story with scleroderma that is nearly eighteen years old now…
Andi P: UCTD and Possible Scleroderma It is believed that I do have an autoimmune disease they are not sure if it is systemic or not, but I know what I live through on a daily basis…
Andrea: Girlfriend with Raynaud's Syndrome (Italy) It started a few months ago when my girlfriend started finding strange spots on her hands when it was cold, they would turn purple…
Andrea H: Mother of Son with Facial Morphea I am the mother of a six-year-old boy called Alex who is suffering from facial scleroderma…
Andy Markman: Systemic Sclerosis I am a forty-two-year-old male. I have had scleroderma for two and a half years. It was first diagnosed as an "atypical phenomena"…
Ang: Morphea and Fibromyalgia I was diagnosed with morphea in February 2002, but had this for a year prior to that without knowing exactly what the diagnosis was…
Angel: Linear Scleroderma I have linear scleroderma. I have had it for a little over five years and I am only twelve…
Angel G: Systemic Scleroderma with Raynaud's Phenomenon I noticed that the middle finger on my right hand had turned so dark in color that it was practically black and I actually thought there was ink on it and tried to wash it off. Oh, if only the remedy had been so easy…
Angela: Mother of Linear Scleroderma Patient We are in search of others who know how to handle the pain and muscle spasms in her legs…
Angela K: Limited Cutaneous Scleroderma I was told I had limited cutaneous scleroderma with Raynaud's phenomenon six years ago…
Angela M: Diffuse Scleroderma The rheumatologist that treats me says it is due to the illness, but my orthopedist says it is a problem that should be operated…
Angela O: CREST Now, the calcinosis is so bad on my fingers, that I find ordinary chores harder and harder…
Angela R: Linear Morphea Scleroderma I am twenty-five now and only have the two spots that I deal with pretty easily. I just hope it doesn't get worse…
Angela S: Overlap Syndrome I am twenty-five years old and I was diagnosed with polymyositis and scleroderma, rheumatoid arthritis, mitral valve prolapse, a heart murmur, and pericarditis…
Angiola: Progressive Systemic Scleroderma (Italy) I would very much like to find other people that find themselves in a similar situation…
Andy P: Surviving Son of Fibrosing Alveolitis Sufferer The hospital is blaming the fibrosing alveolitis, which they say entered an aggressive phase two days before his death…
Anita: Lichen Sclerosus et Atrophicus My concern is that it is spreading all over my body: both legs, my back, my neck and moving toward my face…
Anita A: Sister of Systemic Scleroderma Patient She has had a heart transplant and a kidney transplant. It has been amazing to our family the courage and stamina that she has through all that she has endured…
Anita G: Localized Scleroderma This all started as a small spot that I thought was insignificant, but as time went on, it grew, along with my symptoms…
Anna: Linear Scleroderma (Poland) I realized that it is not worthwhile to give up, even during the most difficult moments; it is necessary to fight and to believe that it will be better. If I had not believed I would not have been alive now…
Anna B: Morphea My Morphea started as bruise-like marks on the backs of my legs about three years ago, after I had just fought cervical cancer and won…
Annabella: Mother of Daughter with Linear/Morphea Scleroderma A mother's intuition never fails. When I first noticed the marks on my little girl's left thigh during bath time last summer, I got a sick feeling in my stomach…
Annette: Diffuse Scleroderma (Illinois) I can see where having friends who understand what I am going through would be a big help…
Annette G: MCTD, Systemic Scleroderma, Chronic Kidney Disease, CFS, Fibromyalgia, Trigeminal Neuralgia, TMJ People think that because I am a nurse I have all the answers. Well guess what? I don't…
(Italiano) Antea: La Sindrome di Sjogren Sono Angela dalla provincia di pesaro, ho 29 anni e da ieri ho scoperto di avere la Sindrome di Sjogren…
Antonellina: Lupus (Italy) I am forty-eight, and eight years ago I was diagnosed with lupus…
Archie Bailey: Scleroderma: Sue's Story Time has passed since Sue's death. Only those who have experienced the grieving process can understand…
Arianna: Early LcSSc with lung involvement, recent alveolitis, and grade II esophagitis with hiatus hernia (Italy) What I want is to struggle against this disease to stop it from beating me…
Ariel: Linear Morphea Luckily, it only affects my skin, so I can still dance and play the piano…
Ariel D: Pansclerotic Morphea My first treatment was chemotherapy, then steroids, then light treatment…
Ariel M-S: Linear Morphea Within six months, the morphea had eaten away almost all of the fat on my arm and I have developed nerve and muscle pains that do not go away…
Ashlin: Localized Scleroderma It took me five months to realize that I needed to go to the doctor, and now I feel that I should not have waited so long…
Audley: Mother of Linear Morphea (en coup de sabre) Patient After one diagnosis of Vitiligo, my motherly intuition told me that the diagnosis was not correct…
Aurora: Linear Scleroderma I am always very tired, and I suffer from pain that will not go away no matter what I do…
Avril: Morphea The consultants in Nottingham, United Kingdom, have all shaken their heads in shock and said that they cannot provide treatment to me…
Awilda: CREST and Morphea Scleroderma In 1971, I had the first symptoms of Raynaud's. I'm fifty-three years old and live in Puerto Rico…
Aziz: Surviving Son of Gangrene Patient (India) What I am writing now is something even more horrible than what you might have read in a Stephen King's scariest of novels. My father died of gangrene…
SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.