Patient Support Programs

Blind and Physically Handicapped
Energy Assistance for Patients
Property Tax Relief for Disabled Persons
Patient Advocacy Programs
Peer Support


Patient support programs include those for the blind, physically handicapped, and disabled. The broad assortment of services includes utility and property tax discounts, access to palliative care and hospice care, patient advocacy programs, and even travel services.

Disability Information and Resources. Their wealth of disability resources includes topics such as computer, housing, and even travel. Jim Lubin.

Wonder Moms Wonder Moms is a project by three moms to share real talk, helpful information, and practical advice with parents of kids who have intellectual disabilities, Down syndrome, autism, language and speech delays, deafness, chronic illness, and traumatic brain injury.

Renters’ Rights and Housing Assistance for People with Disabilities. Living independently is a goal for many young adults with disabilities. It’s an important part of having a fulfilling life, and the drive for freedom exists regardless of ability. Just Great Lawyers.

Blind and Physically Handicapped

That All May Read. National Library Service for the Blind and Physically Handicapped (NLS). Talking Books.A free library program of braille and audio materials circulated to eligible borrowers in the United States by postage-free mail. The Library of Congress.

Energy Assistance Programs for Patients

Check with your local utility companies to see if they offer assistance for people with illnesses. In particular, some areas offer discounted utilities for people with Raynaud's or systemic scleroderma, in recognition of the importance of staying warm at all times with these illnesses. (Also see What is Raynaud's and What is Scleroderma)

Arthritis - Whether Weather Affects Arthritis. To emphasize (and offer a potential financial pearl), it should be noted that the utility companies in many states offer discounts for persons with weather related conditions that require extra heating!

Oil Heat Program. The Citizens Energy Oil Heat Program has delivered millions of gallons of discount home heating oil to poor and elderly households in Massachusetts and other cold weather states since 1979. This unique program helps protect needy families from volatile heating oil prices, which often leave households having to choose between heating the home and paying for other life essentials, such as food, health care, or clothing. Citizens Energy Corporation.

Property Tax Relief for Disabled Persons

Many states offer property tax discounts for seniors and the disabled. To see whether you are eligible, contact your state's property tax department. To find your state's property tax department, google for your state plus property tax and disabled. For example, search for "Minnesota, property tax, disabled." In some states this is a one-time application, and in others the form needs to be filed annually.

Patient Advocacy Programs

Patient Advocate Foundation. Patient Advocate Foundation is a national non-profit organization that seeks to safeguard patients through effective mediation assuring access to care, maintenance of employment and preservation of their financial stability relative to their diagnosis of life threatening or debilitating diseases. PAF.

MedicareSolutions. Provides information and support on How to select a Medicare plan, Eligibility information for all Medicare plan types, and Medicare Choices. USA Phone 1-800-328-7305.

Peer Support

What is Peer Support? Peer support functions to complement, supplement and extend formal primary care services. Peers for Progress.

Peer support. Peer support occurs when people provide knowledge, experience, emotional, social or practical help to each other. Wikipedia.

Go to Scholarships for Scleroderma

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to:

International Scleroderma Network (ISN)
7455 France Ave So #266
Edina, MN 55435-4702 USA
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