ISN Guide to Scleroderma Experts: United States
Overview
All scleroderma patients should be seen by a listed scleroderma expert, at the earliest opportunity, to assure proper diagnosis, adequate screening, optimum treatment, and access to clinical trials.
Because it is so rare, the usual rheumatologist may see only one or two cases of scleroderma in their entire career. The usual process is for suspected cases to be referred to a scleroderma center for diagnosis and management or co-management of ongoing care. (Also see What is Scleroderma?,Types of Scleroderma, Difficult Diagnosis, and Scleroderma Symptoms)
Alabama
Alabama Birmingham School of Medicine The scleroderma expert at this facility used to be Dr. Martin A. Trojanowski, who has since moved to Boston University School of Medicine. hey We don't have any word yet on any other scleroderma expert at this center. ISN.
California
Los Angeles
Scleroderma Center at UCLA. This scleroderma center specializes in treating adults who have any type of scleroderma (localized or systemic.) ISN.
Redwood City
Stanford University School of Medicine. This team consists of Dr. David Fiorentino, a dermatologist, and Dr. Lorinda Chung, a rheumatologist. ISN.
San Francisco
University of California, San Francisco Scleroderma Clinic. This team is led by Dr. Tamiko Katsumoto. They treat all types of scleroderma, both localized and systemic, in adults. ISN.
Colorado
Aurora, Colorado
University of Colorado Scleroderma Clinic This center is for adults with systemic scleroderma. Dr. Fischer is very involved in clinical trials for scleroderma lung disease. ISN.
Denver, Colorado
National Jewish Health and University of Colorado Scleroderma Clinics. This center reports that they diagnose and treat all types of systemic sclerosis (limited or diffuse scleroderma). ISN.
District of Columbia
Dr. Virginia Steen, Georgetown University Medical Center, Washington, D.C. This is a particularly good center for systemic scleroderma patients who have pulmonary hypertension (PH/PAH). ISN.
Illinois
Northwestern Scleroderma Program in Chicago. This center serves adult scleroderma patients from throughout the Midwest. They are dedicated to providing exceptional care while pursuing research toward a cure for scleroderma. ISN.
University of Illinois at Chicago Outpatient Care Center. The rheumatology center provides care for patients with the full spectrum of rheumatic and autoimmune diseases. They diagnose and treat adults with all types of scleroderma. ISN.
Louisianna
Scleroderma and Sarcoidosis Patient Care and Research Center at LSU Health Sciences Center in New Orleans. This center is interested in providing early diagnosis and treatment for scleroderma patients. ISN.
Maryland
Johns Hopkins Scleroderma Center. This center is led by Dr. Frederick Wigley. Johns Hopkins is a major U.S. medical center that ranks tops in many fields, including rheumatology. ISN.
Massachusetts
The Scleroderma Center at Boston University School of Medicine (BUMC). This center is led by Dr. Robert Simms, and it is recognized as an international leader for the diagnosis and treatment of adults who have systemic sclerosis. ISN.
Massachusetts General Hospital This center is led by Dr. Flavia V. Castelion and they treat adults with all types of scleroderma, both localized and systemic. ISN
Michigan
University Of Michigan Scleroderma Program in Ann Arbor. This is scleroderma center is led by Dr. Dinesh Khanna. ISN.
West Michigan Rheumatology treats all types of scleroderma and all ages, which makes them an especially good center for juvenile (childhood) scleroderma morphea, linear, en coup, or systemic). ISN.
Minnesota
Scleroderma Center at the University of Minnesota Physicians. This scleroderma center is led by Dr. Jerry Molitor. They treat adults with any type of scleroderma (not juveniles). ISN.
New Jersey
Rutgers Robert Wood Johnson Scleroderma Program. This scleroderma center is led by Dr. Vivien Hsu, who has over 25 years of experience in this field. This is a good center for adults who have any type of scleroderma, either localized (such as linear or morphea) or systemic. ISN.
New York
Lake Success
NYU Langone Rheumatology Associates, Led by Dr. Avram Goldberg, in New Hyde Park, New York. This center treats adults with any type of scleroderma (localized or systemic). ISN.
New York
The Scleroderma and Vasculitis Center, Led by Dr. Robert Spiera at the Hospital for Special Surgery in New York City. This center treats adults with any type of scleroderma (either localized or systemic). ISN.
Saratoga Springs
The Center for Rheumatology, Saratoga Springs (upstate New York near Albany). Led by Dr. Lee Shapiro, they treat both juveniles and adults, and accept both Medicare and Medicaid. ISN.
Ohio
Cleveland Clinic Scleroderma Program. This scleroderma center is led by Dr. Soumya Chatterjee and handles adults with any type of scleroderma, either localized or systemic. ISN.
Pennsylvania
Philadelphia, Pennsylvania
Scleroderma Center at Thomas Jefferson University. This Scleroderma Center specializes in the treatment of patients with scleroderma and related fibrotic diseases. Dr. Fabian A. Mendoza-Ballesteros is Associate Director of the Scleroderma Center and they treat adults who have any form of scleroderma or other rare skin or fibrotic diseases, such as eosinophilic fasciitis and nephrogenic systemic fibrosis.ISN.
Perelman Center for Advanced Medicine, University of Pennsylvania This center diagnoses and treats all types of scleroderma including localized (morphea, linear, en coup) and (limited or diffuse) systemic sclerosis. ISN.
Pittsburgh, Pennsylvania
University of Pittsburgh Scleroderma Center This center is led by Dr. Robert Lafyatis, they treat adults with all types of scleroderma and provide multidisciplinary care for patients with scleroderma. ISN.
Children's Hospital of Pittsburgh This center is led by Dr. Kathryn Torok and they deal with juvenile patients only and provide treatment for children with localized and systemic scleroderma. ISN
Rhode Island
Dr. Edward Lally is a rheumatologist at Brown University School of Medicine in Providence, Rhode Island. He diagnoses and treats all types of scleroderma including localized (morphea, linear, en coup) and (limited or diffuse) systemic sclerosis. ISN.
South Carolina
Charleston,South Carolina
Scleroderma Experts at the Medical University of South Carolina (MUSC). This is a good center for juvenile scleroderma, for rare scleroderma-like illnesses, and for adults with scleroderma lung involvement. ISN.
Texas
Scleroderma Center at University of Texas - Houston. This scleroderma center is led by Dr. Maureen Mayes, for adults with any type of scleroderma (either localized or systemic). ISN.
Utah
University of Utah Systemic Sclerosis Program. This scleroderma center is particularly good for adults with systemic scleroderma lung involvement. ISN.
Wisconsin
Dr. Kevin McKown, University of Wisconsin at Madison. This scleroderma treats adults with systemic forms of scleroderma. ISN.
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