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SCLERO.ORG is retiring 4-24-2021. Thank you for the memories! You'll still find us in the Wayback Machine, and we'll carry your stories in our hearts forever.

Thyroid Personal Stories

Aurora: Linear Scleroderma I am always very tired, and I suffer from pain that will not go away no matter what I do…

Brenda: Limited Scleroderma, CREST, Raynaud's I was sick for five or six years, telling doctors how much pain I was in…

Dawn M: Linear/Systemic Scleroderma My family and I were informed by the doctors, that the localized/linear form of scleroderma that I was diagnosed with, would never progress into the potentially fatal, systemic form…

Debs B: Diffuse Systemic Sclerosis (England) This seems to be a long list of ailments that I have been coping with for years, so the addition of diffuse systemic sclerosis did not really panic me…

Heather: Vitiligo, Hypothyroidism, and now Linear Morphea I am not too concerned about the other two conditions since there really is nothing you can do about the vitiligo, and the thyroid is under control. The morphea is what is bugging me…

Janet Q: UTCD or MCTD I also experienced new symptoms; joint pain, muscle aches, headaches, very painful carpal tunnel syndrome in both hands, back and neck pain, the list grew on and on…

Jay: Scleroderma and CREST When I was fifteen or so, I noticed that my fingertips were starting to get very sore…

Jerri: CREST Syndrome I was twenty-one years of age when I first noticed that my fingers, toes and lips were turning colors…

Kath: Systemic Sclerosis (Scleroderma) and underactive thyroid Moving to Spain has had a positive effect on my Raynaud's, but has had no effect, so far as I am aware, on my scleroderma…

Kellie: Overlap Scleroderma and Mixed Connective Tissue Disease (MCTD) I am so relieved to read about so many people who have had the same experiences…

Kym: Diffuse, CREST Scleroderma, Lupus and Fibromyalgia It all started with Raynaud's in my fingers and toes when I was about nineteen years old, in 1979…

"LJ" Fullerton : CREST Scleroderma, Rheumatoid Arthritis, Fibromyalgia, Hashimoto's Thyroiditis, Hematoma and Osteomyelitis I need to tell you all the gory details so you can truly understand what a miracle it is that I am alive today…

Marie: Crest and Hashimoto's Thyroiditis I was first diagnosed with Hashimoto's Thyroiditis, about ten years ago. I had a nodule on my thyroid which was biopsied, and Hashimoto's was diagnosed…

Marina F: Sjogren's Syndrome and Vitiligo (Italy) For quite a few years now I have had problems such as eczema in my ear, vitiligo, nodules in the thyroid, dry eyes with a positive Schirmer's test, and vertigo…

(Italiano) Marina F: Sindrome di Sjogren, Vitiligo Ho 47 anni e da diversi anni soffro di vari problemi quali: eczema alle orecchie, vitiligine, noduli tiroidei, secchezza oculare con test di schirmer positivo, e vertigini…

Olga: Difficult Diagnosis Recently I came across sclero.org while researching my illness that has not been recognized neither in my native country nor in Italy, where I moved twelve years ago to escape from cold winters which have destroyed my skin…

Peky: Sjogren's and Hashimoto's Thyroiditis (Italy) This year, after continuing to be sick, I visited the rheumatologist again…

(Italiano) Peky: Sjogren e Hashimoto Solo quest'anno, dopo esser stata male, ho rivisto il reumatologo…

Rosú: Sjogren's Syndrome and Hashimoto's Thyroiditis (Italy) Sjogren's causes periferic polyneuropathy, with pain and loss of sensibility in my right hand and arm…

(Italiano) Rosú: Sindrome di Sjogren e Tiroidite da Hashimoto (Italia) La Sjogren mi causa polineuropatia periferica con dolore é perdita di sensibilitá alla mano e braccio destro…

Sherry: Fibromyalgia, Hypothyroidism and Raynaud's He said Fibromyalgia is just pain, and if I could not handle my job, I should quit…

Susan M: CREST, Raynaud's and Hashimoto's (Canada) I have a fabulous doctor now and she has brought me from a very dark place to one where I can again see the sunshine.

Tina G: Systemic Scleroderma, Interstitial Cystitis and Hashimoto's Thyroiditis Two to three years later I developed muscle and joint pain, hypertension, Hashimoto's Thyroiditis, arm numbness, and confusion…

Yvette: Undifferentiated Connective Tissue Disease (UCTD) and Thyroid Cancer For now, I have accepted that the diagnosis of my core problem is not important. The way I choose to deal with it is…

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SCLERO.ORG was the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses from 1998 to 2021. It was a grassroots movement from the original Scleroderma from A to Z web site, which was founded by Shelley Ensz. We were a 501(c)(3) U.S.-based public charitable foundation. We closed this web site and our nonprofit agency in April 2021.

International Scleroderma Network (ISN)