July 2013 ISN News

(Australia) Scleroderma Victoria's Newsletter

Scleroderma Victoria's July 2013 newsletter is now available online in PDF format. (ISN). Posted 07/24/2013. (Also see Scleroderma Australia)

Genentech is Tackling Scleroderma Now!

The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 07/19/2013.

Our Thanks to Betty Benedict!

The International Scleroderma Network thanks Betty Benedict for her generous ongoing support to tackle scleroderma research, support, education and awareness! Posted 07/19/2013.

Diffuse Scleroderma? Earn $150 with one-hour in-home research study on East Coast U.S.

Research Study for Diffuse Scleroderma Patients. If you live on the East Coast of the U.S., you may be eligible to earn $150 for this one-hour research study, in your own home. Participants will have blood work and urinalysis and answer a medical history questionnaire. The Plasma Source. Posted 07/18/2013.

Our Thanks to United Way of Snohomish County!

The International Scleroderma Network thanks United Way of Snohomish County for their generous donation to tackle scleroderma research, support, education and awareness! Posted 07/16/2013.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 07/14/2013.

In Loving Memory of Peter Lineen

We thank Gregory Carroll, Dennis and Rosemarie Lineen, Bernard and Arlene Inganamorte, and Arthur and Annette Richards for their donations to tackle scleroderma, in memory of Peter Lineen. Posted 07/12/2013.

Linda Fazekas is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Linda Fazekas for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 07/11/2013.

Jo Frowde: ISN News Manager

Jo Frowde has been promoted to ISN News Manager. She has been an ISN News Guide since January 2013. She researches, selects, and prepares current medical abstracts for our Newsroom and web site. Jo is also Manager of Sclero Forums and a Sclero Forums Chat Host. Posted 07/10/2013. (Also see Sclero Forums, and How to Volunteer)

Are You Eligible for Clinical Trials for Scleroderma or Pulmonary Hypertension?

Would you like to help scientists find a cure for scleroderma? Dozens of clinical trials for scleroderma and pulmonary hypertension are actively recruiting now. Review them and be sure to ask your scleroderma expert about the ones you are interested in. Posted 07/09/2013. (Also see Current Clinical Trials and Scleroderma Experts)

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 07/06/2013.

ISN New Topic: Needle Phobia

Needle Phobia. About 10% of people have a needle phobia, but there's no more need to suffer from the devastating effects of this disorder. ISN. Posted 07/05/2013.

Did you know you can help raise scleroderma awareness?

Did you know you can help raise scleroderma awareness? The nonprofit International Scleroderma Network offers scleroderma awareness bracelets! Bracelets for just $2.50 each with free shipping and handling! They say "scleroderma" on one side and "sclero.org" on the other. Posted 07/04/2013.

Huong Nguyen is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Huong Nguyen for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 07/03/2013.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 07/02/2013.

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: