June 2012 ISN News

Phoebe Safrin, in Loving Lasting Memory of Maxine Gail Mackler and in Honor of Gerald Mackler's 70th Birthday

We heartily thank Phoebe Safrin for her donations to tackle scleroderma, in loving lasting memory of Maxine Gail Mackler and in Honor of Gerald Mackler's 70th Birthday. 06/23/12.

Gerald Mackler, in Loving Lasting Memory of Maxine Gail Mackler

We heartily thank Gerald Mackler for his donation to tackle scleroderma, in loving lasting memory of Maxine Gail Mackler. 06/22/12.

June 29th is World Scleroderma Day!

Celebrate the international world of scleroderma with World Scleroderma Day, June 29th, 2012! Order scleroderma awareness bracelets (just $2.50 each, including shipping)! 06/21/12.

Genentech is Tackling Scleroderma Now!

The International Scleroderma Network thanks Genentech for their sponsorship support! Posted 06/19/12.

Our Thanks to Betty Benedict!

The International Scleroderma Network thanks Betty Benedict for her generous donation to tackle scleroderma research, support, education and awareness! Posted 06/18/12.

Sigma-Tau Pharmaceuticals (now Lediant) is Tackling Scleroderma Now!

The International Scleroderma Network thanks Sigma-Tau Pharmaceuticals (now Lediant) for their sponsorship support! Posted 06/16/12.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 06/14/12.

Thanks to Google Matching Gifts

We heartily thank Google Matching Gifts for their donation to tackle scleroderma. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. Posted 06/07/12.

Michael Thorpe: ISN Sclero Forums Blogger

Michael Thorpe (Amanda's husband) has joined us as an ISN Sclero Forums Blogger. He has started a blog entitled, “Stop the Rollercoaster!” in which he will talk about his experience as a care giver, in the hope that it will encourage and support others. (Also see:How to Volunteer) Posted 06/06/12.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 06/06/12.

Oh my goodness, what did Adam and Pam Mackler do?

The International Scleroderma Network thanks Adam and Pam Mackler for their donation to tackle scleroderma research in loving memory of Maxine Gail Mackler. Posted 06/05/12.

ISN Video: Emotional Adjustment with Systemic Scleroderma by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Emotional Adjustment with Systemic Scleroderma. Many people with scleroderma suffer from chronic pain. In order to maintain an acceptable quality of life it is important to learn how to manage the pain. (Also see Scleroderma Videos, and Amanda Thorpe). Posted 06/04/12.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 06/03/12.

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: