February 2012 ISN News

ISN Scleroderma Gift Shop

Raise awareness of scleroderma and support our nonprofit agency while enjoying wonderful items from our ISN Gift Shop! A portion of each item goes to the nonprofit International Scleroderma Network (ISN) to help provide our full range of services, all throughout the world. Posted 02/28/12.

Featuring: Scleroderma Expert in Providence, Rhode Island

Dr. Edward Lally is a rheumatologist at Brown University School of Medicine in Providence, Rhode Island. He diagnoses and treats all types of scleroderma including localized (morphea, linear, en coup) and (limited or diffuse) systemic sclerosis. ISN. Posted 02/27/12.

Syvette & Mark Chayette, In Honor of Gerald Mackler's 70th Birthday

Thanks to Sylvette and Mark Chayette for their donation in loving lasting memory of Maxine Gail Mackler and in honor of Gerald Mackler's 70th birthday! 02/25/12.

Huh. What did Jill Skoving do?

The nonprofit International Scleroderma Network thanks Jill Skoving for ordering scleroderma awareness bracelets this month! Match her fashion statement. Posted 02/24/12.

Marie Minardo, In Honor of Gerald Mackler's 70th Birthday

Thanks to Marie Minardo for her donation in loving lasting memory of Maxine Gail Mackler and in honor of Gerald Mackler's 70th birthday! 02/20/12.

Simone Rosenblum, In Loving Memory of Maxine Gail Mackler

We heartily thank Simone Rosenblum for her donation to tackle scleroderma, in loving memory of Maxine Gail Mackler. 02/17/12.

Our Thanks to Betty Benedict!

The International Scleroderma Network thanks Betty Benedict for her generous donation to tackle scleroderma research, support, education and awareness! Posted 01/15/12.

In Loving Memory of Marek Sniathiewicz

The International Scleroderma Network thanks Grace Sniathiewicz for her donation in loving memory of her husband, Marek Sniathiewicz, who passed away today. Posted 02/12/12. (Also see In Loving Memory)

Sigma-Tau Pharmaceuticals (now Lediant) is Tackling Scleroderma Now!

The International Scleroderma Network thanks Sigma-Tau Pharmaceuticals (now Lediant) for their sponsorship support! Posted 02/12/12.

ISN Video: Scleroderma Chats

Do you like to chat? We'd love to get to know you! Amanda Thorpe has produced a video, entitled Scleroderma Hosted Chats. Did you know that we offer four hosted chats each week, to be available to people in every part of the world? (Also see Amanda Thorpe) Posted 02/11/12.

Slide Show of Kathy Baker Story

Kathy Baker: CREST, Systemic Sclerosis. This is a text slideshow of Kathy's story, including photos of finger amputations. Posted 02/10/12.

Gilead is Tackling Scleroderma Now!

The International Scleroderma Network thanks Gilead for their sponsorship support! Posted 02/09/12.

ISN Video: Fatigue in Systemic Scleroderma by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Fatigue in Systemic Scleroderma. Did you know that mild to extreme fatigue is a common symptom of scleroderma? It affects your daily activities and overall quality of life. (Also see Amanda Thorpe and How to Volunteer) Posted 02/09/12.

New Patient Story: Michelle P.

Michelle P: Sjögren's Syndrome I went to see Professor Hughes in London in 2010… Posted 02/08/12.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 02/06/12.

In Honor of Gerald Mackler's 70th Birthday

Thanks to Kenneth Wein for his donation in loving lasting memory of Maxine Gail Mackler and in honor of Gerald Mackler's 70th birthday! 02/05/12.

Edna Trichell is Reading the Voices of Scleroderma Books!

The nonprofit International Scleroderma Network thanks Edna Trichell for raising scleroderma awareness through the purchase of Voices of Scleroderma Volume 1, which is based on the hundreds of stories posted on the sclero.org web site. Posted 02/03/12.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 02/02/12.

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: