September 2011 ISN News

Rose Marie Tartaglia is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Rose Marie Tartaglia for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 09/20/2011.

ISN Video: Why I Love Sclero Forums by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Why I Love Sclero Forums -- and Why You Could, Too! Is Sclero Forums the right place for you to get scleroderma support and information, anywhere in the world? Watch this video to find out! (Also see Amanda Thorpe and How to Volunteer) Posted 09-17-11.

ISN Video: Photos of Scleroderma Symptoms

The ISN has produced another video, entitled Photos of Scleroderma Symptoms. It includes photos and brief explanations of Raynaud's, digital ulcers, gangrene, digital sympathectomy, and sclerodactyly. It is narrated by Shelley Ensz. (Also see Amanda Thorpe and How to Volunteer) Posted 09-16-11.

ISN Video: Sclerodactyly by Amanda Thorpe

Amanda Thorpe has produced another video, entitled Symptoms of Systemic Sclerosis (Scleroderma): Sclerodactyly. When the skin on the fingers become tight, stretched, wax-like, and hardened it is called sclerodactyly. (Also see Amanda Thorpe and How to Volunteer) Posted 09-15-11.

(Australia) Scleroderma Victoria's Winter/Spring Newsletter

Scleroderma Victoria's Winter/Spring 2011 newsletter is now available online in PDF format. They have a new brochure on dealing with bowel and bladder problems, which is now available and discussed in the newsletter, as well. (ISN). Posted 09/17/2011.

Jo Frowde: ISN Sclero Forums Manager

Jo Frowde has been promoted from ISN Sclero Forums Assistant Manager to ISN Sclero Forums Manager. In this new position, she will be responsible for the management, development and training for Sclero Forums. Posted 09/15/2011. (Also see Sclero Forums, and How to Volunteer)

Melissa Lewis is Raising Scleroderma Awareness Again!

The nonprofit International Scleroderma Network thanks Melissa Lewis for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 09/15/2011.

Susan S. is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Susan S. for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 09/10/2011.

United Therapeutics is Tackling Scleroderma Now!

The International Scleroderma Network thanks United Therapeutics for their sponsorship support! Posted 09/09/2011.

Janet Paulmenn, in Memory of Mary Dell Martin ("Bookworm")

We thank Janet Paulmenn for her donation to tackle scleroderma, in loving memory of Mary Dell Martin "Bookworm" on Sclero Forums). Posted 09/06/2011.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 08/03/2011.

ISN Presents: Scleroderma Heart Involvement Video by Amanda Thorpe

Amanda Thorpe has also become an ISN Video Presenter. Her first video, Scleroderma Heart Involvement, gives a brief overview of heart involvement in systemic sclerosis. (Also see Amanda Thorpe and How to Volunteer) Posted 09-05-11.

ISN Presents: Scleroderma Videos by Isabella Ensz

We have produced some exciting new videos! Isabella Ensz presents What is Scleroderma?, Types of Scleroderma, and Juvenile Scleroderma. If you would like to be an ISN Video Presenter, volunteer now and fill in "Video Presenter" for title. Existing ISN volunteers can just contact Shelley for more information. Posted 09-06-11.

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: