July 2011 ISN News

Angela Ostdiek is Raising Awareness of Scleroderma and Esophageal Cancer

The nonprofit International Scleroderma Network thanks Angela Ostdiek for raising awareness of scleroderma and esophageal cancer with scleroderma awareness bracelets! Posted 07/27/2011.

Larry Bodak is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Larry Bodak for raising awareness of scleroderma with scleroderma awareness bracelets! Posted 07/28/2011.

In Loving Memory of Maria Elvira Amorim Magalhães

We thank Sonya and Ruben Dias for their donation in loving memory of Maria Magalhães (Sonya's mother) and in lieu of wedding favors for their upcoming nuptials in Portugal. Their thoughtful donation tackles stellar research, support, education and awareness for scleroderma, worldwide. 07/25/2011.

Janet Paulmenn, In Loving Memory of Marjorie Elaine Settle

We heartily thank Janet Paulmenn for her donation to tackle scleroderma, in loving memory of Marjorie Elaine Settle. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. Janet, this is a wonderful way to honor her memory, and we deeply appreciate your thoughtfulness. 07/22/2011.

New Story: Kathy H: En Golpe de Sable

(Español/Spanish) Kathy H: En Golpe de Sable A los cinco años me empezó a salir una línea negra en la frente, parecía mancha, como un lunar, así que mis padres no se preocuparon… Posted 07/21/2011.

Robin Harper is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Robin Harper for raising scleroderma awareness with scleroderma awareness bracelets! Posted 07/21/2011.

Jean Shannon is Reading Voices of Scleroderma Books

The nonprofit International Scleroderma Network thanks Jean Shannon for raising scleroderma education and awareness through the purchase of Voices of Scleroderma Volume 1, which is based on the hundreds of stories posted on the sclero.org web site. Posted 07/20/2011.

Susan Kraft Ordered Scleroderma Awareness Bracelets!

The nonprofit International Scleroderma Network thanks Susan Kraft for raising scleroderma awareness with scleroderma awareness bracelets. Posted 07/18/2011.

New Story: Kathy H: En Coup de Sabre Scleroderma

Kathy H: En Coup de Sabre Scleroderma When I was five years old I got a small black line in my forehead, a spot, like a mole, so my parents were not too worried about it.. Posted 07/17/2011..

Christine Gordon Ordered Scleroderma Awareness Bracelets!

The nonprofit International Scleroderma Network thanks Christine Gordon for raising scleroderma awareness with scleroderma awareness bracelets. Posted 07/16/2011.

Gerald Mackler, In Loving Memory of Maxine Gail Mackler

We heartily thank Jerry, Adam, Allison, Pam and Jay Mackler for their donation to tackle scleroderma, in loving memory of Maxine Gail Mackler. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. Gerald, we deeply appreciate you and your family's thoughtful, continual and generous support over the years, in loving memory of your beloved wife. It is a wonderful way to honor her memory, and we deeply appreciate it. 07/04/2011.

Jo Frowde: ISN Sclero Forums Assistant Manager

ISN congratulates Jo Frowde: ISN Sclero Forums Assistant Manager. The nonprofit International Scleroderma Network thanks Joe Frowde for taking on an additional volunteer role. Jo is also an ISN Chat Host, and an ISN Assistant News Guide, and has been an ISN Sclero Forums Support Specialist since November 2010. She joins our forums administrative team, providing behind-the scenes assistance reviewing and approving pending memberships and other things necessary to keep our forums running smoothly. (Also see Jo Frowde, Sclero Forums, and How to Volunteer) Posted 07-13-11.

Robin Martin is Raising Scleroderma Awareness In Loving Memory of Mary Martin

The nonprofit International Scleroderma Network thanks Robin Martin for raising scleroderma awareness in loving memory of Mary Martin with scleroderma awareness bracelets. Posted 07/13/2011.

Thanks to Kathy Baxter!

We thank Kathy Baxter for her ongoing pledges to tackle scleroderma through the United Way. Her continual dedication helps provide more research, support, education and awareness for scleroderma and related illnesses. You too can help us tackle scleroderma by donating now! 07/12/2011.

Thanks to Peggy Raymond!

We thank Peggy Raymond for her donation to tackle scleroderma. Her gift helps provide more research, support, education and awareness for scleroderma and related illnesses. Posted 07/08/2011.

Rhonda Trevino is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Rhonda Trevino for raising scleroderma awareness with scleroderma awareness bracelets! Posted 07/05/2011.

Simone Rosenblum, In Loving Memory of Maxine Gail Mackler

We heartily thank Simone Rosenblum for her donation to tackle scleroderma, in loving memory of Maxine Gail Mackler. 07/04/2011.

Thanks to United Way of Snohomish County

We heartily thank United Way of Snohomish County for their donation to tackle scleroderma. Posted 07/03/2011.

Story Update: Donna C: Dysautonomia with Inappropriate Sinus Tachycardia (IST)

(Update) Donna C: Dysautonomia with Inappropriate Sinus Tachycardia (IST) I was happy to finally have answers but saddened that I had to live for eight years with most doctors telling me I had anxiety, or, even worse, that it was all in my head… Posted 07/02/2011.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 07/01/2011.

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: