June 2011 ISN News

Tiffany Smith is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Tiffany Smith for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. These stretchy, one size fits all bands say "scleroderma" on one side and "sclero.org" on the other. Posted 06/30/2011.

Carolyn McCreary, Thanks for Tackling Scleroderma!

We heartily thank Carolyn McCreary for her donation to tackle scleroderma. 06/30/2011.

Lisa Daniel is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Lisa M Daniel for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. These stretchy, one size fits all bands say "scleroderma" on one side and "sclero.org" on the other. Posted 06/29/2011.

Allyson Whiting is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Allyson Whiting for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. These stretchy, one size fits all bands say "scleroderma" on one side and "sclero.org" on the other. Posted 06/29/2011.

Joelle Scales is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Joelle Scales for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. These stretchy, one size fits all bands say "scleroderma" on one side and "sclero.org" on the other. Posted 06/28/2011.

In Loving Memory of Mary Paquette

We heartily thank Anonymous for their donation to tackle scleroderma research, in memory of Mary Paquette. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. 06/21/2011.

Carol Miller is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Carol Miller for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. These stretchy, one size fits all bands say "scleroderma" on one side and "sclero.org" on the other. Posted 06/19/2011.

Jennifer Gutierrez is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Jennifer Gutierrez for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Bracelets are $2.50 each with free shipping and handling. They say "scleroderma" on one side and "sclero.org" on the other, and are a must for sclero fashinistas everywhere! Posted 06/18/2011.

Thanks to Google Matching Gifts!

We heartily thank Google Matching Gifts for their donation to tackle scleroderma. The International Scleroderma Network (SCLERO.ORG) is a full-service nonprofit agency. We rely on volunteers as much as possible to give donations the absolute maximum impact for scleroderma. We are thrilled with this donation to provide greatly needed research, support, education and awareness for scleroderma and related illnesses. You too can help us tackle scleroderma by donating now! 06/17/2011.

Debra Barker is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Debra Barker for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 06/16/2011.

You're Invited to the Grand Opening of Remodeled Sclero Shops!

You are invited to the Grand Opening of our freshly remodeled Sclero Shop! We've put on a fresh layer of paint, hung new pictures on the walls, and rearranged the furniture. Visit our shop, browse around, and perhaps you too can help us tackle scleroderma by donating or shopping now! 06/15/2011.

Janet Paulmenn, Thanks for Tackling Scleroderma!

We heartily thank Janet Paulmenn for her donation to tackle scleroderma. 06/15/2011.

Jo Frowde, ISN Assistant News Guide

ISN Welcomes Jo Frowde: ISN Assistant News Guide. Jo is also an ISN Sclero Forums Support Specialist, and an ISN Chat Host. She began training as an ISN Assistant News Guide in June 2011. She will be posting items from the ISN newsroom to Sclero Forums and hopes to expand her involvement from there. Posted 06/14/2011.

Ellen Peroutka is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Ellen Peroutka for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 06/14/2011.

Christina Cervantes is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Christina Cervantes for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 06/06/2011.

Simone Rosenblum, Thanks for Tackling Scleroderma Again, In Loving Memory of Maxine Gail Mackler

We heartily thank Simone Rosenblum for her donation to tackle scleroderma, in loving memory of Maxine Gail Mackler. 06/06/2011.

Leslie Moore-Grant is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Leslie Moore-Grant for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 06/05/2011.

New Story: Franchina: Systemic Sclerosis (Italy)

Franchina: Systemic Sclerosis (Italy) I am sixty-one years old, and I discovered I had this illness eleven years ago. Most likely I had it two years before, but nobody understood what was wrong… Posted 06/04/2011.

(Italiano) Franchina: Sclerosi Sistemica (Italia) Ho 61 anni, ho scoperto la mia malattia 11 anni fa ma sicuramente l'avevo gia 2 anni prima ma nessuno riusciva a capire niente… Posted 06/04/2011.

Ruth Torres is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Ruth Torres for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 06/04/2011.

Eugenia Delgado is Raising Scleroderma Awareness Again!

The nonprofit International Scleroderma Network thanks Eugenia Delgado for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 06/03/2011.

New Story: Kim K: Mother of Morphea Patient

Kim K: Mother of Morphea Patient The dermatologist said they hoped this medicine would help the morphea stop growing. So far it is still growing. I am now worried that it is starting on her forehead… Posted 06/03/2011.

ISN New Topic: Swan Neck Deformity in Rheumatoid Arthritis

Rheumatoid Arthritis: Swan Neck Deformity. Swan Neck Deformity is a classic feature of rheumatoid arthritis that is related to laxity and instability of the joint as the rheumatoid lesion destroys the supporting tissues. It is almost never seen in systemic scleroderma (SSc) unless it is in overlap with rheumatoid arthritis (RA). Posted 06/02/2011.

Kimberly Dziel is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Kimberly Dziel for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 06/02/2011.

Leticia Villalobos is Raising Scleroderma Awareness

The nonprofit International Scleroderma Network thanks Leticia Villalobos for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 06/01/2011.

Do you have digital (finger) ulcers?

The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Posted 06/01/2011.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 06/01/2011.

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: