January 2011 ISN News

Braden Pleas' Culture Fair Project on Scleroderma

Braden Pleas presented a 7th grade Culture Fair project on scleroderma yesterday at Chimacum Middle School in Chimacum, Washington. His board was then chosen to be one of ten to be displayed at the Jefferson County Library for two weeks! The left side of the board is titled, "What is Scleroderma?" with photos from ISN of Raynaud's and joint contractures. Then, "Five New Things I Learned." The middle is "Celebrities Working for a Cure" and the lower left section is on ISN and his interview with ISN Founder and President, Shelley Ensz, along with a pocket of ISN brochures. The center section is, "A Day in the Life of My Mom", where he graphed his mother's pain scale throughout a full day. The right side of the board is titled "Components of Culture". The ISN thanks Braden for educating the public and raising awareness of scleroderma! (Also see Scleroderma School Reports) Posted 1-25-11.

New Patient Story: Elizabeth O.

Elizabeth O: Linear Scleroderma I am afraid also because it goes through my left eye, which I see becoming smaller…

(Español/Spanish) Elizabeth O: Esclerodermia Lineal Me da temor porque pasa por mi ojo izquierdo, que cada día noto más pequeño…

McGraw-Hill Companies are Tackling Scleroderma Now!

The nonprofit International Scleroderma Network thanks McGraw-Hill Companies for tackling scleroderma through their recent comprehensive donation for research, support, education and awareness. Posted 01-25-11.

New Topic: Anesthesia Considerations for Systemic Sclerosis (SSc, or Scleroderma)

Anesthesia Considerations for Systemic Sclerosis (SSc, or Scleroderma). Care should be taken to select the best anesthetic or analgesia for systemic sclerosis (scleroderma) patients, with consideration of their entire medical history plus general risk factors for scleroderma. ISN. Posted 01-24-11.

New Patient Story: Gianfry (English and Italian)

Gianfry: Systemic Sclerosis (Italy) One day in February I felt that there was no flow of blood to my index finger, and it turned rather pale…

(Italiano) Gianfry: Sclerosi Sistemica (Italia) Un giorno di febbraio mi sono sentito un non ritorno di sangue all'indice che assumeva un colore piuttosto pallido…

New Patient Story: Queenie

Queenie: Systemic Sclerosis with Pulmonary Fibrosis (Liverpool) It was only when my mother went onto the internet looking at illnesses that had all the symptoms that I was showing that we found Raynaud's and scleroderma…

In Loving Memory of Mary Bedard

The nonprofit International Scleroderma Network thanks Richard Bedard for his donation in loving memory of Mary Bedard. Posted 01/21/2011.

Kimberly Lund is Reading Voices of Scleroderma Book Series

The nonprofit International Scleroderma Network thanks Kimberly Lund for raising scleroderma awareness through the purchase of Voices of Scleroderma book series (volumes 1-3), which is based on the hundreds of stories posted on the sclero.org web site. Posted 01/20/2011.

Caroline Shank, Thanks for Tackling Scleroderma Now!

We heartily thank Caroline Shank for her donation to tackle scleroderma to start the new year off right. 01/19/2011.

Simone Rosenblum, Thanks for Tackling Scleroderma Now, In Loving Memory of Maxine Gail Mackler

We heartily thank Simone Rosenblum for her donation to tackle scleroderma this holiday season, in loving memory of Maxine Gail Mackler. 01/18/2011.

Joyce Engelbert is Reading Voices of Scleroderma Book Series

The nonprofit International Scleroderma Network thanks Joyce Engelbert for raising scleroderma awareness through the purchase of Voices of Scleroderma book series (volumes 1-3), which is based on the hundreds of stories posted on the sclero.org web site. Posted 01/17/2011.

Mischel Wells is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Mischel Wells for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 01/16/2011.

Paul Buckley is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Paul Buckley for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 01/15/2011.

Audrey Hinds is Reading Voices of Scleroderma Books

The nonprofit International Scleroderma Network thanks Audrey Hinds for raising scleroderma awareness through the purchase of Voices of Scleroderma Volume 1, which is based on the hundreds of stories posted on the sclero.org web site. Posted 01/14/2011.

Dental Involvement in Systemic Sclerosis (SSc, scleroderma)

Dental Involvement in Systemic Sclerosis features 20 new pages of information on dental complications that can occur in systemic scleroderma. Illustrated topics include bone resorption, candida, cavities, dental amalgam, dental fears, dental implants, dentures, general dentistry, microstomia (small mouth), mouth sores, periodontal disease, photos, scleroderma, sensitive teeth, stories, TMJ problems, tongue and oral cancers, trigeminal neuralgia, and xerostomia (dry mouth). Posted 01/01/2011.

Do you have digital (finger) ulcers?

The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers. Posted 01/01/2011.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 01/01/2011.

Cynthia Duggar, Thanks for Tackling Scleroderma Now!

We heartily thank Cynthia Duggar for her donation to tackle scleroderma this holiday season. Posted 01/01/2011.

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: