December 2010 ISN News

Patsy Lundberg, Thanks for Tackling Scleroderma Now!

We heartily thank Patsy Lundberg for her donation to tackle scleroderma this holiday season. Posted 12/31/10.

Paul Buckley is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Paul Buckley for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 12/31/10.

Debra Payne is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Debra Payne for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 12/31/10.

Maria Acuna, Thanks for Tackling Scleroderma Now!

We heartily thank Maria Acuna for her donation to tackle scleroderma this holiday season. Posted 12/31/10.

Pamela Wood is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Pamela Wood for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 12/31/10.

Cordy Mack, Thanks for Tackling Scleroderma Now!

We heartily thank Cordy Mack for her donation to tackle scleroderma this holiday season. Posted 12/31/10.

Kim Thwaits, Thanks for Tackling Scleroderma Now!

We heartily thank Kim Thwaits for her donation to tackle scleroderma this holiday season. Posted 12/31/10.

Janet Paulmenn, Thanks for Tackling Scleroderma Now!

We heartily thank Janet Paulmenn for her donation to tackle scleroderma this holiday season. Posted 12/31/10.

Laura Mandel, Thanks for Tackling Scleroderma Now!

We heartily thank Laura Mandel for her donation to tackle scleroderma this holiday season. Posted 12/31/10.

Rose Adkins, Thanks for Tackling Scleroderma Now!

We heartily thank Rose Adkins for her donation to tackle scleroderma this holiday season. Posted 12/31/10.

Sherry Power, Thanks for Tackling Scleroderma Now!

We heartily thank Sherry Power for her donation to tackle scleroderma this holiday season, in honor of Deb Kelso and Tracy Klimchak. Posted 12/31/10.

Marilyn Oxby, Thanks for Tackling Scleroderma Now!

We heartily thank Marilyn Oxby for her donation to tackle scleroderma this holiday season. 12/08/10.

New Patient Story: Kirasia: Diffuse Scleroderma

Kirasia: Diffuse Scleroderma (Italy) I have been on sick leave for around twelve months in the last three years, and I risk a fifty percent reduction of my salary, which would be a big problem as I live on my own…Posted 12-20-10.

(Italiano) Kirasia: Sclerodermia Diffusa (Italia) Stò raggiungendo i 12 mesi di malattia accumulati negli ultimi 3 anni,e rischio la diminuzione dello stipendio del 50% che sarebbe un ulteriore problema, vivendo io da sola… Posted 12-20-10.

Gerald Mackler, Thanks for Tackling Scleroderma Now, In Loving Memory of Maxine Gail Mackler

We heartily thank Gerald Mackler and Simone Rosenblum for their donation to tackle scleroderma this holiday season, in loving memory of Maxine Gail Mackler. 12/18/10.

New Patient Story: Deborah T: Scleroderma

Deborah T: Scleroderma No doctor seems to help me. My doctor just says I have so many problems its hard to know what to do… Posted 12-17-10.

Arnold Slotkin, Thanks for Tackling Scleroderma Now, In Loving Memory of Marta Marx

We heartily thank Arnold Slotkin for his donation to tackle scleroderma this holiday season, in loving memory of Marta Marx.

New Caregiver Story: Moroni, in English and Spanish

Moroni: Husband with Systemic Sclerosis My husband was diagnosed with this illness two years ago. It all began with a cardiac arrhythmia. I took him to a cardiologist who performed an echocardiogram, where he realized that his heart had some damage…

(Español/Spanish) Moroni: Esposa de Paciente con Esclerosis Sistémica Mi esposo fue diagnosticado con esta enfermedad hace dos años, se le manifestó con una arritmia cardiaca, lo llevé a un cardiólogo y éste le realizó un ecocardiograma y se dio cuenta de que su corazón presentaba una restricción… Posted 12-15-10.

New Patient Story: Angel G.

Angel G: Systemic Scleroderma with Raynaud's Phenomenon I noticed that the middle finger on my right hand had turned so dark in color that it was practically black and I actually thought there was ink on it and tried to wash it off. Oh, if only the remedy had been so easy… Posted 12-14-10.

Melissa Shea is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Melissa Shea for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 12/13/10.

Dental Involvement in Systemic Sclerosis (SSc, scleroderma)

Dental Involvement in Systemic Sclerosis features 20 new pages of information on dental complications that can occur in systemic scleroderma. Illustrated topics include bone resorption, candida, cavities, dental amalgam, dental fears, dental implants, dentures, general dentistry, microstomia (small mouth), mouth sores, periodontal disease, photos, scleroderma, sensitive teeth, stories, TMJ problems, tongue and oral cancers, trigeminal neuralgia, and xerostomia (dry mouth). Posted 12/13/10.

Wendy Frazier is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Wendy Frazier for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 12/10/10.

Julia Jordan is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Julia Jordan for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 12/09/10.

Jessica Quattrucci, Thanks for Tackling Scleroderma Now!

We heartily thank Jessica Quattrucci for her donation to tackle scleroderma this holiday season.12/08/10.

Linda Clinton, Thanks for Tackling Scleroderma Now, In Loving Memory of Johnna Kay Vogler.

We heartily thank Linda Clinton for her donation to tackle scleroderma this holiday season, in loving memory of Johnna Kay Vogler. 12/07/10.

Melanie Andrews is Reading Voices of Scleroderma Books

The nonprofit International Scleroderma Network thanks Melanie Andrews for raising scleroderma awareness through the purchase of Voices of Scleroderma Volume 3, which is based on the hundreds of stories posted on the sclero.org web site. Posted 12/06/10.

Gil Stewart is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Gil Stewart for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 12/06/10.

United Way, Thanks for Tackling Scleroderma Now!

We heartily thank United Way of Snohomish County for their donation to tackle scleroderma this holiday season. 12/05/10.

Natasha Lubin is Raising Scleroderma Awareness!

The nonprofit International Scleroderma Network thanks Natasha Lubin for raising scleroderma awareness through the purchase of scleroderma awareness bracelets! Posted 12/04/10.

Do you have digital (finger) ulcers?

The scleroderma DISTOL trial is still recruiting patients who have active digital ulcers.Posted 12/02/10.

Actelion Pharmaceuticals US, Inc. is Tackling Scleroderma Now!

The International Scleroderma Network thanks Actelion Pharmaceuticals US, Inc. for their sponsorship support! Posted 12/01/10.

SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: