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Scleroderma ISN/Website |
Lisa Bulman: ISN Assistant Manager for Sclero Forums. Lisa has been promoted from Senior Support Specialist to Assistant Manager for the new and exciting Sclero Forums. Lisa is also ISN Fundraiser and ISN Assistant News Guide. Posted 10-30-06.
The International Scleroderma Network thanks Joe and Sandy Tweed for their comprehensive donation to tackle scleroderma research, support, education and awareness in loving memory of Ruth Blommel. (Also see ISN Donations In Loving Memory)
The International Center for Juvenile Scleroderma in Padova, Italy has recently been established in Padova, Italy. It is led by Dr. Francesco Zulia who is Chief of the Pediatric Rheumatology Unit at the University of Padova, Italy. The center treats all forms of juvenile scleroderma, both localized and systemic. Posted 10-18-06. (Also see Juvenile Scleroderma Experts)
Everyone is invited to the grand opening of ISN's Sclero Forums ! Our custom forum offers message boards, private messaging between members, photo gallery and even a blog! It is fast, easy and free to join and post messages. Posted 10-16-06.
Colombiana Support Group Nuestra proxima reunion se ralizara el Viernes 27 de Octubre de 2006 a las 10:00 A.M. en la Biblioteca Luis Angel Arango, sede Bogota, D.C. Calle 11 #4-14. Posted 10-10-06.
In loving memory of Jill Carpenter, Gene and Shelley Ensz have made a comprehensive donation for research, support, education and awareness for scleroderma and related illnesses. Jill was a retired ISN volunteer from the U.K., who served as an ISN Support Specialist and as an ISN Assistant News Guide. She suffered from scleroderma and myasthenia gravis, and passed away from lymphoma on Saturday, September 23, 2006, in Queen Elizabeth Hospital. (Also see Jill: CREST Scleroderma and Sjogrens, and In Loving Memory Donors).
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: