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Scleroderma ISN/Website |
The International Scleroderma Network thanks Lisa Bulman's Scoring for Scleroderma fundraiser for their special donation for scleroderma research! Posted 07-28-06.
Sandy Strong: ISN Board of Directors. I take the responsibilities of being a board member seriously, and I must admit I feel a bit daunted by the many challenges and opportunities it entails. But I am honored to be part of the ISN, and I will do my utmost to make good decisions on its behalf. Posted 07-28-06.
The International Scleroderma Network thanks Lisa Bulman's Scoring for Scleroderma fundraiser for their comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 07-28-06.
Folleto en español, La Esclerodermia Sistemica Difusa. (Gratis, PDF). La Esclerodermia Difusa se caracteriza por el desarrollo de una marcada fibrosis de la piel, las articulaciones, el tronco y la cara. Pudiendo presentarse en cualquier parte del cuerpo. Suele afectar algunos órganos internos del paciente tales como riñones, pulmones, corazón, esófago e intestinos lo que hace que se diagnostique como una enfermedad grave para quienes la padecen. Posted 07-26-06. (Also see Asociación Colombiana de Esclerodermia)
Folleto en español, La Esclerodermia Limitada: Síndrome de C.R.E.S.T. (Gratis PDF). La Esclerodermia es una enfermedad crónica que se da cuando el sistema inmunológico del cuerpo ataca a sus propios tejidos. La Esclerodermia Limitada frecuentemente también es denominada Síndrome de C.R.E.S.T. Posted 07-21-06. (Also see Asociación Colombiana de Esclerodermia)
A Patient Guide to Ocular Inflammatory Disease. This is an online guide, covering symptoms, diagnosis and treatment for inflammatory eye diseases. In addition, printed copies of this guide can be requested free of charge from the Ocular Immunology and Uveitis Foundation. (Also see ISN Guide to Eye Involvement and Dr. C. Stephen Foster, ISN Medical Advisory Board) Posted 07-18-06.
The International Scleroderma Network thanks Patsy Lundberg for her comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 07-17-06. (Also see ISN: Comprehensive Donors)
The International Scleroderma Network thanks James Hemenway for his comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 07-18-06. (Also see ISN: Comprehensive Donors)
The International Scleroderma Network thanks Mary Ellen and Mark Powell for their donation to tackle scleroderma research, support, education and awareness in loving memory of Doris Schwartz. Posted 07-18-06. (Also see ISN: In Loving Memory Donors)
Colombiana Support Group Nuestra proxima reunion se celebra el Sabado 29 de Julio de 2006 a las 10:00 A.M. en el edificio World Trade Center, calle 100 # 8 A - 55, Bogota, D.C.. Posted 07-14-06.
The nonprofit International Scleroderma Network extends our thanks to Sherrill Knaggs. Her additional donation helps tackle scleroderma with top notch scleroderma research. Posted 07-12-06.
The International Scleroderma Network thanks Sherrill Knaggs for her comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 07-12-06. (Also see Sherrill Knaggs: ISN News Guide and ISN: Comprehensive Donors)
The International Scleroderma Network thanks Heidi Nolan for her comprehensive donation to tackle scleroderma research, support, education and awareness! Posted 07-07-06. (Also see Heidi Nolan: ISN Manager for Sclero MSN Community and ISN: Comprehensive Donors)
The International Scleroderma Network thanks Narre Warren South P-12 College of Australia for their donation to tackle scleroderma research, support, education and awareness in loving memory of Jack Matarazzo. Posted 07-07-06. (Also see ISN: In Loving Memory Donors)
The International Scleroderma Network thanks Yujia Wu for the donation to tackle scleroderma research in loving memory of Doris Schwartz. Posted 07-06-06. (Also see ISN: In Loving Memory Donors)
Shelley Ensz, Founder and President of the International Scleroderma Network and Co-Editor of the Voices of Scleroderma Book Series, will be doing public book signings for all 3 volumes at: Panera Bread in Minnesota from 10:30am-2:00pm on July 6, 2006 (Thu) at 8251 Flying Cloud Dr, Eden Prairie, Minnesota. Books will be available for purchase. Posted 07-03-06.
Colombiana Support Group Nuestra proxima reunion se realizara el Sabado 1 de Julio de 2006 a las 11:00 A.M. en la Universidad Nacional de Colombia. Sede Bogota. Facultad de Medicina. Dirige la Dra. Paola Coral Alvarado, Internista - Residente Reumatologia. Posted 06-15-06.
SCLERO.ORG is the world's leading nonprofit for trustworthy research, support, education and awareness for scleroderma and related illnesses. We are a 501(c)(3) U.S.-based public charitable foundation, established in 2002. Meet Our Team. Donations may also be mailed to: